INTRODUCTION - For All Patients In Any Country

Thank you for taking part in this online survey of patients. This survey will be used as part of Lymphoma Canada's submission to the pan-Canadian Oncology Drug Review (www.pCODR.ca). The pan-Canadian Oncology Drug Review (pCODR) assesses cancer drugs and makes recommendations to provinces and territories to guide their drug funding decisions.

The purpose of this survey is to help develop a complete and thorough submission to help governments understand the value of new cancer drugs to patients and caregivers. The drug that will soon be reviewed by pCODR is tisagenlecleucel (CTL019 or Kymriah) - a CAR-T therapy for the treatment of diffuse large B cell lymphoma (DLBCL).

Your feedback is extremely important and may help improve access to this new drug for patients. You do not need to live in Canada to respond to this survey; we appreciate input from every follicular lymphoma patient. The greater the response the better our data will be. The survey results may also be shared with other international groups who are submitting patient experience data for drug submissions. We will ensure no identifying information is shared.
 
YOU DO NOT HAVE TO BE A CANADIAN RESIDENT TO RESPOND TO THIS SURVEY; WE APPRECIATE INPUT FROM ALL PATIENTS WITH DLBCL WHO HAVE BEEN TREATED WITH CAR-T THERAPY.
 
If you have any questions, concerns, or technical difficulties while completing this survey please contact Elizabeth Lye at: elizabeth@lymphoma.ca

Privacy Policy: To ensure patient privacy and confidentiality, individual responses will not be identifiable. It is important to note that selected quotations may be used for the final submission to government agencies without reference to patient name or any other information that could lead to identifying the patient.


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* 1. You can complete this survey anonymously. Should you wish, Lymphoma Canada can contact you for a telephone interview. You may choose this option if you would prefer to be interviewed INSTEAD of completing the online survey OR if you would like to provide supplementary information IN ADDTION to your survey responses.

Please note: If you would like to be contacted, please provide your contact information in question #2.

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* 2. OPTIONAL: Please provide your contact information if you would like to be contacted for a telephone interview.

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