Lymphoma Canada - Watch and Wait Awareness and Advocacy Campaign |
Introduction
Thank you for taking part in this online survey of patients & caregivers. This survey is part of Lymphoma Canada’s Watch and Wait Awareness and Advocacy Campaign, which seeks to understand the unique challenges faced by people living with lymphoma or CLL who are on a “watch and wait” approach (also known as active surveillance), as well as the experiences of their caregivers.
For many patients with indolent (slow-growing) lymphoma or CLL, watch and wait involves regular monitoring without immediate treatment. While medically appropriate, this approach can bring feelings of uncertainty, anxiety, and emotional distress. By sharing your experiences, you will help shed light on the mental health and support needs of this community.
For many patients with indolent (slow-growing) lymphoma or CLL, watch and wait involves regular monitoring without immediate treatment. While medically appropriate, this approach can bring feelings of uncertainty, anxiety, and emotional distress. By sharing your experiences, you will help shed light on the mental health and support needs of this community.
Your feedback will be compiled into a comprehensive report that will:
· Help inform healthcare providers and policymakers about the lived experiences of patients and caregivers
· Guide the development of resources and advocacy efforts
· Support public education on the emotional impact of watch and wait
Your voice matters. This survey should take approximately 10-20 minutes to complete. Together, we can work to improve understanding, and advocate for better support for those living with lymphoma/cll on watch and wait.
If you have any questions, concerns, or technical difficulties while completing this survey please contact Lymphoma Canada at: info@lymphoma.ca
Privacy Policy: To ensure patient privacy and confidentiality, individual responses will not be identifiable. It is important to note that selected quotations may be used for the final report without reference to patient name or any other information that could lead to identifying the patient.
If you have any questions, concerns, or technical difficulties while completing this survey please contact Lymphoma Canada at: info@lymphoma.ca
Privacy Policy: To ensure patient privacy and confidentiality, individual responses will not be identifiable. It is important to note that selected quotations may be used for the final report without reference to patient name or any other information that could lead to identifying the patient.