FASDs Survey

Today the group of Fetal Alcohol Spectrum Disorders (FASDs) is the single leading cause of preventable mental retardation in United States and in other countries.

We need your input in order to improve services for everybody involved in care for those affected by prenatal exposure to alcohol and their caregivers.

Your help in this preliminary survey is highly appreciated. Feel free to forward this survey to other lists/individuals who can be interested in participating.

If you will have any questions, please contact me directly at drgordina @ globalpediatrics.net

Thank you,
Alla Gordina, MD, FAAP

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* 1. WHAT IS KNOWN?

In your personal opinion what is known about FASDs and FASDs-specific services?

  Exellent Good Fair Poor Non existent
state of common knowledge
level of professional education
available medical services
available educational services
available mental health services
available auxiliary services (OT, speech, etc)
medical insurance coverage

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* 2. WHAT YOU WOULD LIKE TO KNOW?

If given an opportunity to speak with leading experts on Fetal Alcohol Spectrum Disorders what 5 QUESTIONS would you like to ask on the subject of FASDs?

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* 3. Tell us about yourself. You are a

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* 4. For medical and mental health care providers: please describe your practice (mark all that apply):

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* 5. THIS QUESTION IS FOR PARENTS OF CHILDREN WITH FASDs OR SUSPECTED FASDs ONLY. Please do not answer this question unless you have a child with FASDs or suspected FASDs.

How long did it take to confirm your child's FASDs diagnosis (time between suspicion that something is wrong till confirmation of FASDs)

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* 6. THIS QUESTION IS FOR PARENTS OF CHILDREN WITH FASDs OR SUSPECTED FASDs ONLY. Please do not answer this question unless you have a child with FASDs or suspected FASDs.

How old was your child at the time of disgnosis?

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* 7. You live/practice in

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* 8. You live/practice in

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* 9. You did receive the link to this survey through...

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* 10. If you are interested in participating in incoming surveys regarding the FASD-related issues, please leave your contact information

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