Patient Advocacy Leaders United for Obesity Survey

	Very Important	Fairly Important	Important	Slightly Important	Not At All Important
Community-based healthcare services	Community-based healthcare services Very Important	Community-based healthcare services Fairly Important	Community-based healthcare services Important	Community-based healthcare services Slightly Important	Community-based healthcare services Not At All Important
Patient/family voice in policies and practices	Patient/family voice in policies and practices Very Important	Patient/family voice in policies and practices Fairly Important	Patient/family voice in policies and practices Important	Patient/family voice in policies and practices Slightly Important	Patient/family voice in policies and practices Not At All Important
Stigma and discrimination	Stigma and discrimination Very Important	Stigma and discrimination Fairly Important	Stigma and discrimination Important	Stigma and discrimination Slightly Important	Stigma and discrimination Not At All Important
Social determinants contributing to obesity	Social determinants contributing to obesity Very Important	Social determinants contributing to obesity Fairly Important	Social determinants contributing to obesity Important	Social determinants contributing to obesity Slightly Important	Social determinants contributing to obesity Not At All Important
Treatment disparities	Treatment disparities Very Important	Treatment disparities Fairly Important	Treatment disparities Important	Treatment disparities Slightly Important	Treatment disparities Not At All Important
Cost of care	Cost of care Very Important	Cost of care Fairly Important	Cost of care Important	Cost of care Slightly Important	Cost of care Not At All Important
Inadequate insurance coverage	Inadequate insurance coverage Very Important	Inadequate insurance coverage Fairly Important	Inadequate insurance coverage Important	Inadequate insurance coverage Slightly Important	Inadequate insurance coverage Not At All Important
Integrated treatment for obesity and other chronic conditions	Integrated treatment for obesity and other chronic conditions Very Important	Integrated treatment for obesity and other chronic conditions Fairly Important	Integrated treatment for obesity and other chronic conditions Important	Integrated treatment for obesity and other chronic conditions Slightly Important	Integrated treatment for obesity and other chronic conditions Not At All Important
Level of patient knowledge of the illness and care available	Level of patient knowledge of the illness and care available Very Important	Level of patient knowledge of the illness and care available Fairly Important	Level of patient knowledge of the illness and care available Important	Level of patient knowledge of the illness and care available Slightly Important	Level of patient knowledge of the illness and care available Not At All Important
Inadequate workforce	Inadequate workforce Very Important	Inadequate workforce Fairly Important	Inadequate workforce Important	Inadequate workforce Slightly Important	Inadequate workforce Not At All Important
Empowered patient and advocacy community	Empowered patient and advocacy community Very Important	Empowered patient and advocacy community Fairly Important	Empowered patient and advocacy community Important	Empowered patient and advocacy community Slightly Important	Empowered patient and advocacy community Not At All Important

Very Important

Fairly Important

Important

Slightly Important

Not At All Important

Community-based healthcare services

Community-based healthcare services Very Important

Community-based healthcare services Fairly Important

Community-based healthcare services Important

Community-based healthcare services Slightly Important

Community-based healthcare services Not At All Important

Patient/family voice in policies and practices

Patient/family voice in policies and practices Very Important

Patient/family voice in policies and practices Fairly Important

Patient/family voice in policies and practices Important

Patient/family voice in policies and practices Slightly Important

Patient/family voice in policies and practices Not At All Important

Stigma and discrimination

Stigma and discrimination Very Important

Stigma and discrimination Fairly Important

Stigma and discrimination Important

Stigma and discrimination Slightly Important

Stigma and discrimination Not At All Important

Social determinants contributing to obesity

Social determinants contributing to obesity Very Important

Social determinants contributing to obesity Fairly Important

Social determinants contributing to obesity Important

Social determinants contributing to obesity Slightly Important

Social determinants contributing to obesity Not At All Important

Treatment disparities

Treatment disparities Very Important

Treatment disparities Fairly Important

Treatment disparities Important

Treatment disparities Slightly Important

Treatment disparities Not At All Important

Cost of care

Cost of care Very Important

Cost of care Fairly Important

Cost of care Important

Cost of care Slightly Important

Cost of care Not At All Important

Inadequate insurance coverage

Inadequate insurance coverage Very Important

Inadequate insurance coverage Fairly Important

Inadequate insurance coverage Important

Inadequate insurance coverage Slightly Important

Inadequate insurance coverage Not At All Important

Integrated treatment for obesity and other chronic conditions

Integrated treatment for obesity and other chronic conditions Very Important

Integrated treatment for obesity and other chronic conditions Fairly Important

Integrated treatment for obesity and other chronic conditions Important

Integrated treatment for obesity and other chronic conditions Slightly Important

Integrated treatment for obesity and other chronic conditions Not At All Important

Level of patient knowledge of the illness and care available

Level of patient knowledge of the illness and care available Very Important

Level of patient knowledge of the illness and care available Fairly Important

Level of patient knowledge of the illness and care available Important

Level of patient knowledge of the illness and care available Slightly Important

Level of patient knowledge of the illness and care available Not At All Important

Inadequate workforce

Inadequate workforce Very Important

Inadequate workforce Fairly Important

Inadequate workforce Important

Inadequate workforce Slightly Important

Inadequate workforce Not At All Important

Empowered patient and advocacy community

Empowered patient and advocacy community Very Important

Empowered patient and advocacy community Fairly Important

Empowered patient and advocacy community Important

Empowered patient and advocacy community Slightly Important

Empowered patient and advocacy community Not At All Important

Question Title

* As you think about policy changes that could comprehensively address the obesity epidemic, where are you or would you invest your time and resources?

At the Federal Level, such as supporting TROA

At the state level, i.e. improving Medicaid coverage for obesity, or making insurance regulatory changes, workforce development

At the local level, i.e. working on health disparities, food security, living wage

All of the above

Other (please specify)

Question Title

* Based on your experience, which health advocacy organizations/individuals have been effective in addressing the obesity epidemic?

Question Title

* As you think about your advocacy work in obesity and/or related co-morbid chronic illnesses, which strategies and tactics have you found to be effective? Check all that apply.

Personal stories presented to legislators at meetings or legislative hearings

Building relationships with policy makers and decision makers

Effective messaging

Mobilizing patient voices, storybooks and or rallies at the legislature

Collaborating with other advocacy groups across therapeutic areas i.e., building a common agenda with obesity, heart, mental health and food advocacy groups

Engaging key influencers/power brokers from your community, clergy, police captain, business person, academic expert

Creating health literacy materials to educate constituents

Building community awareness

Other (please specify)

Question Title

* In your advocacy work, have you been able to identify any regulatory or legislative action to model and scale up to address the issues associated with obesity care?

Yes

If Yes, please explain.

Question Title

* As you think about your advocacy work in obesity and/or related co-morbid chronic illnesses, how would you rate your effectiveness?

1 - Just starting, no progress yet

2 - Have begun working on an advocacy plan

3 - Working with other advocacy groups to come to a common agenda and messaging campaign

4 - Engaging the patient voices and mobilizing them into action

5 - Developing a policy framework, finding sponsors for legislative action

6 - Putting an advocacy plan into action -taking action in collaboration with other advocacy organizations to pass legislation

7 - Legislation successful, policy passed, implementation phase

Other (please specify)

Question Title

* Are there individuals/organizations we should connect with who can help us further understand the field of obesity and advocacy? Please include names and email (if available) below.

Question Title

* Please include your contact information below so we can keep you updated on our PALs United for Obesity efforts. Thank you for your support!

Name

Organization

Title

City/Town

State

Email Address

Question Title

* If you have any additional information you would like to share about the survey or suggestions/perspectives on this work, best practices, etc., please include below. Thank you!

The Center for Patient Advocacy Leaders (CPALs) is a collaborative initiative of The AIDS Institute (TAI). CPALs is dedicated to improving the lives of those affected by disease and chronic health conditions by educating and mobilizing health advocacy leaders to work collaboratively in developing impactful policy and advocacy solutions to timely health care issues. Its programs and events are guided by expert, Advocate Advisors from our national network, who help ensure CPALs is driven By Advocates, For Advocates.

Patient Advocacy Leaders United for Obesity

We want to hear from you! Please "Weigh In" so our collective voices can be heard!

Question Title

* What do you think are the major barriers to a comprehensive approach for treating obesity and promoting healthy weight? Choose your Top 5.

Question Title

* Please rate the following areas as to their level of importance to address the obesity epidemic:

Question Title

* As you think about policy changes that could comprehensively address the obesity epidemic, where are you or would you invest your time and resources?

Question Title

* Based on your experience, which health advocacy organizations/individuals have been effective in addressing the obesity epidemic?

Question Title

* As you think about your advocacy work in obesity and/or related co-morbid chronic illnesses, which strategies and tactics have you found to be effective? Check all that apply.

Question Title

* In your advocacy work, have you been able to identify any regulatory or legislative action to model and scale up to address the issues associated with obesity care?

Question Title

* As you think about your advocacy work in obesity and/or related co-morbid chronic illnesses, how would you rate your effectiveness?

Question Title

* Are there individuals/organizations we should connect with who can help us further understand the field of obesity and advocacy? Please include names and email (if available) below.

Question Title

* Please include your contact information below so we can keep you updated on our PALs United for Obesity efforts. Thank you for your support!

Question Title

* If you have any additional information you would like to share about the survey or suggestions/perspectives on this work, best practices, etc., please include below. Thank you!