Experiences of challenging behaviour in young children, including those with special needs

This survey aims to find out about the experiences of parents and carers supporting young children including those who may have additional needs. We want to understand your experience of parenting a child who may display difficult or challenging behaviours. The survey is aimed at parents and family carers whose children are age 11 or under.  It is part of a project led by the Institute of Health Visitors and supported by the Challenging Behaviour Foundation and other charities funded by the Burdett Trust for Nursing.  The results will help to inform training and awareness raising materials for health visitors to help improve their support for all families.

If you have more than one child who is displaying difficult or challenging behaviour age 11 or under please fill the survey in for your youngest child only.  You can fill in another version for the other child/ren if you wish.

The survey should take about 10 to 15 minutes to complete and you can stop part way through and come back to it.

Support

We understand that engaging with past experiences of challenging behaviour or difficult times can recall unpleasant memories and that aspects of this questionnaire may act as a trigger for this. Details of support organisations can be found in the end of the survey.

Confidentiality

We will keep your information confidential unless we have concerns about the safety of a vulnerable adult or child. In these circumstances we will follow our safeguarding policies which are available on request. All data is stored in a secure electronic format. When reporting the findings of this questionnaire we will not include any information that could personally identify you or your family member. A copy of our confidentiality policy can be provided on request.
About you

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* 1. Please type in the first 3 or 4 digits of your postcode ( ie BN6, GU12 etc.) this will not be used to identify you. 

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* 2. What is your relationship to the child you have caring responsibilities for?

About your child

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* 3. Please tick any of the following statements which apply to your child.  You can tick more than one - as many as apply.

My child has....

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* 4. How old is your child?

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* 5. Is your child

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* 6. Does your child have any siblings?

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* 7. Do you have any concerns about your ability to communicate with your child?

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* 8. If yes, please explain your concerns (e.g. my child cannot communicate verbally, my child does not seem to understand me).

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* 9. Do you have any concerns about your child’s interaction with others?

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* 10. If yes, please explain your concerns (e.g. my child has no interest in playing with others.)

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* 11. Do you have any concerns about your child’s development

Challenging / difficult behaviour

This section asks about behaviours your child may show which you find particularly difficult.  Things which you feel go well beyond normal “toddler tantrums” which impact negatively on your child, yourself or others in the family.

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* 12. Please tick any of the difficulties or behaviours in the list below which your child has shown:

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* 13. What age did your child first show challenging/difficult behaviour?

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* 14. How often does this behaviour occur?

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* 15. What impact did the difficult /behaviour have on your family’s daily life before your child started school (answer for now if they do not go to school)?  Tick as many as apply.

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* 16. What impact did the behaviour have on your ability to access services like your GP, health visitor, nursery or childcare or community facilities like parks?

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* 17. What impact did the behaviour have on your ability to link up with other families with young children?

Information and support with challenging behaviour

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* 18. During the pre-school years, were you given any information or support about supporting a child whose behaviour is difficult or challenging?

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* 19. If yes, who provided the information or support with challenging behaviour?

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* 20. How useful was the information or support?

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* 21. Did you discuss challenging/difficult behaviour with your health visitor?

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* 22. If yes, what was their response?

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* 23. Did you find the health visitor response helpful?

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* 24. Do you have any other comments about support or information you received about supporting a child whose behaviour is challenging or difficult in the pre-school years?

Tools and strategies

This section asks about any tools or strategies in place around your child’s behaviour

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* 25. Do/have you used any of the following to try and prevent challenging behaviour? Please tick as many as apply.

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* 26. Do you use any of the following to respond to difficult /challenging behaviour?

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* 27. Please explain in your own words your feelings about using this approach.

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* 28. As far as you are aware, are/were any of the following approaches used by any of the services your child attended in the pre-school years e.g. childcare, nursery, hospital visits, respite care, short breaks? (tick as many as apply)

Suggestions to improve support in future

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* 29. What additional support for difficult behaviour would have improved your experience when your child was younger? (tick as many as apply)

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* 30. What would you have liked your health visitor to have known or done to support your child and family better? 

Thank you so much for completing our survey. Your response will help to inform resources and training for Health Visitors.

If you need further support, you can find below organisations that can support you and your relative.

- The Challenging Behaviour Foundation provide information and support to families caring for individuals with severe learning disabilities, who may display behaviour described as challenging.
Tel: 0300 666 0126, email support@thecbf.org.uk, website: https://www.challengingbehaviour.org.uk/

- Contact support families of disabled children and can put you in contact with other families.
Tel: 0808 808 3555, website: www.cafamily.org.uk

- Family Lives
offer advice about issues like behaviour.
Parent helpline: 0808 800 2222    Website: http://www.familylives.org.uk/how-we-can-help/confidential-helpline/

- National Autistic Society (NAS) offer support and information on their helpline: 0808 800 4104, www.autism.org.uk 
This is a link to the NAS ‘Your Community’ which includes a discussion forum: www.community.autism.org.uk  

- Mencap can provide online support for family carers who have a relative with a learning disability (or child with developmental delay). You can call their helpline Mencap Direct: 0808 808 111 or go to www.mencap.org.uk/familyhub  

- The Sleep Charity offer a range of support and services from working directly with families who are approaching crisis point to delivering training to professionals and corporate clients.
Tel: +44 (0)1302 751 416       Website: https://thesleepcharity.org.uk/ 
 
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