What are the risks and benefits of participating?
There are no anticipated risks associated with participating in this research. By participating in this questionnaire you will have the opportunity to share your views on the quality of services offered to children with a hearing loss that may help to improve the quality of services offered for children with a hearing loss. A $300 Coles group gift card will be awarded as a prize to one randomly selected survey participant.
How will your privacy be protected?
The collected data will be stored securely on a password protected computer in the Chief Investigator’s office. Data will be retained for a minimum of 5 years as per University of Newcastle requirements. Due to the anonymous nature of the survey the responses you provide will not be identifiable unless you also volunteer to be interviewed. If you enter the prize draw for the Coles Gift Card, your contact details will not be linked to your survey responses so your responses will remain anonymous
If you volunteer for an interview, you will be asked to provide your name & contact details at the end of the survey. This means your survey responses will not be anonymous, as we will use some of the demographic data you provide (e.g. location) to select a range of interview participants from rural, regional and remote areas. Names on surveys & interview transcripts will be replaced by numbers & codes for storage. An external private service will be contracted to transcribe the interviews & they will be required to sign a confidentiality agreement. Interview participants will be given the opportunity to review their transcripts.
How will the information collected be used?
The collected data will be submitted in a thesis for Megan Barr’s PhD and will be presented in academic publications & conferences. Non-identifiable data may be shared with other parties to encourage scientific scrutiny & to contribute to further research & public knowledge, or as required by law.
You can access a summary of the results of the research by e-mailing Megan six months after the survey is completed & a video summary of the results will be sent to service providers. Individual participants will not be named or identified in any reports although individual anonymous responses may be quoted.
What do you need to do to participate?
Please read this Information Statement and be sure you understand its contents before you consent to participate. If you are completing the online survey please click on the link below. If you would like to talk through the survey over the phone, please contact Megan on 0474 112164. Completion of the survey will be taken as your implied consent to participate.
If you volunteer for an interview, Megan will contact you to advise whether you have been selected and to make arrangements if you are still willing to participate.
If you would like further information please contact Megan Barr Megan.Barr@newcastle.edu.au or 0436 385 269 or her supervisor Kerry.Dally@newcastle.edu
Thank you for considering this invitation.
Dr Kerry Dally, Dr Jill Duncan & Megan Barr.
University of Newcastle
Complaints about this research
This project has been approved by the University’s Human Research Ethics Committee, Approval No. H-2017-0239. Should you have concerns about your rights as a participant in this research, or you have a complaint about the manner in which the research is conducted, it may be given to the researcher, or, if an independent person is preferred, to the Human Research Ethics Officer, Research Services, NIER Precinct, The University of Newcastle, University Drive, Callaghan NSW 2308, Australia, telephone (02) 4921 6333, email Human-Ethics@newcastle.edu.au.