CCHA Mission

The Canadian Congenital Heart Alliance (CCHA) is a registered charity run/coordinated by a volunteer Board of Directors. CCHA was founded in 2004 by a group of adult congenital heart disease survivors and their families.

Our Mission is to improve the quality of life and health outcomes for individuals with congenital heart defects, through advocacy, raising awareness, education and advancing research.

The CCHA’s Board of Directors continues to be comprised primarily of individuals who are themselves or have family members that are living with congenital heart disease (CHD). The board is dedicated to promoting
excellence in CHD care and supporting patients who have CHD, as well as their families, friends, the medical community and aligned patient groups. With donations of money, time and resources, the CCHA aims to improve the quality of life of patients with CHD. In addition, a Professional Advisory Committee supports the CCHA mission. Furthermore, local chapters across Canada are actively functioning to support CHD in their communities and the organization supports expansions across other regions and communities.

Our objectives include:
• Raising awareness of congenital heart defects and the CCHA within the congenital population,
medical community, government, and public
• Provide support and education to patients and families
• Advance congenital heart disease-related research
• Raise money to achieve financial self-sufficiency and fund CCHA initiatives

2018 is a strategic planning year for CCHA. This fall we will endeavour to develop our 2019-2022 Strategic Plan. As we go into this, please give us your thoughts and input on how you would like to see CCHA support CHD across Canada and our members. Survey closes August 31, 2018.