BCNS Child Survey |
Letter to the Parents
Dear BCCNS parents,
Basal Cell Carcinoma Nevus Syndrome, aka Gorlin-Goltz Syndrome, may be a rare genetic condition for everyone else. However, affected families, especially children who are afflicted, have to adjust to a whole new way of life, encompassing the medical, socio-psychological and physical struggles of the disorder at a very young age, and throughout their lifetime.
In line with our commitment to understand some of the challenges that these brave hearts endure, we are seeking to examine healthcare satisfaction, quality of life, and coping strategies among children as we direct our collective efforts to improve their future by influencing quality medical care and creating socially amicable, resilient environments.
The best way to accomplish this is by asking for your participation in this collaborative survey in order to provide us insight on your child’s habits, their specific doctor-patient interactions, challenges and coping mechanisms influenced by Basal Cell Carcinoma Nevus Syndrome.
We appreciate your deliberative and meaningful participation.
“Raise Awareness and Find A Cure”
Thank You!
Basal Cell Carcinoma Nevus Syndrome, aka Gorlin-Goltz Syndrome, may be a rare genetic condition for everyone else. However, affected families, especially children who are afflicted, have to adjust to a whole new way of life, encompassing the medical, socio-psychological and physical struggles of the disorder at a very young age, and throughout their lifetime.
In line with our commitment to understand some of the challenges that these brave hearts endure, we are seeking to examine healthcare satisfaction, quality of life, and coping strategies among children as we direct our collective efforts to improve their future by influencing quality medical care and creating socially amicable, resilient environments.
The best way to accomplish this is by asking for your participation in this collaborative survey in order to provide us insight on your child’s habits, their specific doctor-patient interactions, challenges and coping mechanisms influenced by Basal Cell Carcinoma Nevus Syndrome.
We appreciate your deliberative and meaningful participation.
“Raise Awareness and Find A Cure”
Thank You!