Bloodborne virus personal story

INTRODUCTION

This form is for Australian citizens/permanent residents
  • who have a bleeding disorder and were exposed to HIV, hepatitis B or hepatitis C through their treatment products before 1993
  • or their partner/immediate family
Would you be interested in sharing your personal story for Haemophilia Foundation Australia (HFA)’s Inquiry submission?

HFA is preparing for the 2026-2027 Senate Inquiry into the infected blood scandal. This will cover the traumatic experience of being exposed to bloodborne viruses, the significant ongoing impact on the lives of affected people with bleeding disorders, and the inadequate response by government to date.

Read more about our recent advocacy on our website - HFA and hepatitis C.

In the coming months, we will need affected people from our community to share their personal story for our submission.

Some may prefer to remain private and use a pseudonym rather than their real name. Stories can be written or recorded, depending on your preference.

HFA will need your real name to communicate with you but we will keep your personal information confidential. We will only use the information from this form for our submission and for the advocacy work that follows.

If completing this form raises any issues for you, please consider reaching out for support, for example, talking to those close to you or:
  • Your usual counsellor
  • The social worker/psychologist/counsellor at your Haemophilia Treatment Centre
  • Your GP (who can also give a referral to counselling)
  • Lifeline – phone 131114
For questions about your current hepatitis C or liver health, speak to your hepatitis specialist or your GP. For questions about hep C testing you can also contact HepLink (national telehealth service).

If you have questions relating to HIV or HIV/HCV coinfection, speak to your HIV or coinfection treating team.
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