1. Needs Assessment Survey 2014

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Please rank (by category) the need for the following supports for people with autism and/or their families in North Carolina. Indicate which supports should be the highest priority (=1), second highest priority (=2), and so on until the lowest priority. *note, you will only be allowed to select a number one time (i.e. the survey
does not allow for several #1 priorities)

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* 1. Advocacy

  1 Highest Priority 2 3 4 5 6 Lowest Priority
Provide a voice for individuals and families in schools, in the community, and with medical professionals
Individual support for families through information and referral
Group or parent-to-parent support through chapters
Advocacy for rights of and a voice for individuals with autism in the legislature and with local policy makers
Helping individuals to be self-advocates
Support for siblings, grandparents, and other extended family

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* 2. Training and Education

  1 Highest Priority 2 3 4 5 6 Lowest Priority
Parent education and training
Raise public awareness of autism
Education and training for school system and child-care personnel
Education and training for Managed Care Organization personnel and other providers, clinicians
Education and training for medical personnel
Education and training for first responders (EMT, police, fire, etc.)

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* 3. Direct Services – Children

  1 Highest Priority 2 3 4 5 6 7 8 9 Lowest Priority
Community services – Medicaid (CAP/Innovations), state-funded (respite or hab services)
Diagnostic services
Early intervention services
Overnight camps like Camp Royall
Recreation services (social groups, art groups, etc.)
Crisis intervention/behavioral consultation
Behavioral therapy
Day camps, summer programs, afterschool programs
Residential services for children

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* 4. Direct Services - Adult

  1 Highest Priority 2 3 4 5 6 7 8 9 Lowest Priority
Community services – Medicaid (CAP/Innovations), state-funded and Vocational Rehabilitation
Meaningful day programming
Transition services into adulthood
Services for those aging with ASD
Overnight camps like Camp Royall
Recreation services (social groups, art groups, etc.)
Residential services/shared living for adults
Vocational services (supported employment)
Crisis intervention/behavioral consultation
How would you rate the quality of ASNC in the following areas? How well are we doing on areas indicated
below? For areas that are rated as low quality, please provide suggestions for improvement.

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* 5. Advocacy

  very high quality high quality average low quality very low quality
Legislative advocacy
Individual and family advocacy/Information and referral
Self-advocacy
Chapter/support groups
Advocacy for rights of individuals with autism
Support for siblings, grandparents, and other extended family

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* 6. Training and Education

  very high quality high quality average low quality very low quality
Raise public awareness of autism
Bookstore
Annual conference
Training of ASNC staff
Training for parents and other caregivers
Training for the community – school systems, child-care providers, MCOs, other providers, medical professionals, and first responders

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* 7. Direct Services

  very high quality high quality average low quality very low quality
Community services – Medicaid (CAP/Innovations), state-funded, and Vocational Rehabilitation
Camp Royall
Recreation services (social groups, art groups, etc.)
Residential services for adults
Meaningful day programming
Adult transition services
Vocational services (supported employment)
Behavioral consultation
Crisis services/consultation
Behavior therapy

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* 8. Please list 2 to 3 things that you believe ASNC could do more of or do better to support the needs of the
autism community.

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* 9. Please list 2 to 3 things that you believe ASNC is currently doing well to support the needs of the autism community.

Thinking beyond ASNC, please rate HOW WELL you think the following needs are being met today by and other organizations.

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* 10. Advocacy

  very well met well met not met not met at all
Provide a voice for individuals and families in schools, in the community, and with medical professionals
Individual support for families through information and referral
Group or parent-to-parent support through chapters
Advocacy for rights of and a voice for individuals with autism in the legislature and with local policy makers
Helping individuals to be self-advocates
Support for siblings, grandparents, and other extended family

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* 11. Training and Education

  very well met well met not met not met at all
Parent education and training
Raise public awareness of autism
Education and training for school system and child-care personnel
Education and training for MCO personnel and other providers
Education and training for medical personnel
Education and training for first responders (EMT, police, fire, etc.)

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* 12. Direct Services - Children

  very well met well met not met not met at all
Community services – Medicaid (CAP/Innovations), state-funded
Diagnostic services
Early intervention services
Overnight camps like Camp Royall
Day camps, summer programs, afterschool programs
Recreation services (social groups, art groups, etc.)
Residential services for children
Crisis intervention/behavioral consultation
Behavior therapy

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* 13. Direct Services - Adult

  very well met well met not met not met at all
Community services – Medicaid (CAP/Innovations), state-funded and Vocational Rehabilitation
Meaningful day programming
Transition services into adulthood
Services for those aging with ASD
Overnight camps like Camp Royall
Recreation services (social groups, art groups, etc.)
Residential/shared living services for adults
Vocational services (supported employment)
Crisis intervention/behavioral consultation

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* 14. Please select the Autism Society of North Carolina services/events that you have used or experienced:

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* 15. Of those services/events listed above, how would you rate our quality and customer service? Consider how quickly staff responded to you, were able to find an answer to your question, were knowledgeable, how
eager staff were to help and how well they listened to you.

  extremely high quality high quality average below average lowest quality
Chapter/support group
Autism Resource Specialists (Parent Advocates)
Camp Royall staff
Annual conference staff
Workshop staff
Bookstore staff
Run/Walks for Autism (staff/volunteers)
Community services (local office/staff)
Recreation service staff
Residential service staff
Day program staff
Adult transition service staff
Vocational service staff
Behavioral consultation staff
Behavior therapy staff
Website/Social Media/other publications