AMD Study introduction

The scope of the following questionnaire is to collect the opinions and perspectives directly from patients, and public such as carers, on the most important daily expectations and needs of people affected by "advanced, dry" age related macular degeneration (AMD). This questionnaire is particularly focused on the end-stage, advanced form of dry AMD called "geographic atrophy" where patients lose complete vision in the central visual field. Currently, there is no sufficient medical treatment for dry AMD. This questionnaire is completely anonymized, no personal data will be collected. The anonymized data resulting from the following questionnaire will be collected by Pixium Vision to assist with regulatory applications for a new retinal implant device as part of a human research trial in the UK. Pixium Vision is a company based in France developing a "bionic" electronic medical device to restore partial central vision in patients affected by "advanced, dry" AMD.

If you are a person affected by advanced, dry AMD, you should be helped by somebody with normal eyesight to read and fill the questionnaire.  

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* 1. You are

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* 2. If you are a patient with AMD, are you registered with visual impairment?

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* 3. Before reading the questionnaire, could you please indicate the three most important tasks that you can no longer perform due to your vision

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* 4. Below there is a list of 12 activities, could you identify the three most important tasks that you can no longer perform due to your vision ?

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* 5. For these daily living activities, how do you do them today? (For each activity, there are 5 possible answers listed across the top of the form)

  I don't do it anymore, not even helped Somebody helps me I have learned to use my other senses to do it I can still do it with my peripheral vision I use a device
Complete administrative documents and Read your mail
Make your everyday payments (recognize the currency, use your bank card)
Moving outside: Read a train table at the station, street names, find an elevator, the toilets
Enjoy your hobbies: arrow words, card games, board games, sew, tinker
Recognize and differentiate people
Cooking : Use appliance like oven, find ingredients on a shelve and differentiate them
Use your phone

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