Participant Information Sheet

Activating Lived Experience Leadership – Online Survey

Dear Participant,

You are invited to participate in a research project entitled  Activating Lived Experience Leadership. 

We are asking if you would like to engage in an online survey about your knowledge and experience as a person who is a lived experience leader or advocate.

The Activating Lived Experience Leadership (ALEL) research project is a partnership between the Lived Experience Leadership & Advocacy Network (LELAN) and University of South Australia’s Mental Health and Suicide Prevention Research Group (MHSPRG). The research project is the most significant investment to date in the area of inquiry in South Australia and has been funded by the Fay Fuller Foundation for two years.

Participation in this research is completely voluntary.  If you do not wish to take part, you do not have to.  

Before you decide whether or not to be involved, it is important that you are clear on what you are being asked to do and the benefits of being involved. Your decision whether to take part in the research will not affect your relationship with the ALEL research project team members. 

What is the purpose of this research? 
The broad purpose of the ALEL research project is to examine and describe key aspects of lived experience leadership and how it can be better connected, recognised and used for systems change.  The key aspects that we will explore include, definitions of leadership, the different roles that leaders take on, the conditions and supports that help with influence and change and the learning resources that help leaders.  We would like to learn about your understanding and experience of these areas.

What will I need to do if I participate?
You will be asked to take part in an online survey which will take between 30 and 40 minutes.  There are 16 questions with a number being open questions which seek your views as a lived experience leader.

Who is being invited to participate in the research?  
You can participate in this study if
1) you are over 18 years of age
2) you have lived experience of mental health related distress or are a carer of a person experiencing mental health related distress and
3) you are active as a leader in contributing to improving services or community awareness. You may be active in advocacy and policy, peer networks and support, community education or advisory roles. 
The online survey will be open to people nationally.