Most reporting systems for adverse medical events are concerned with collecting information for use by healthcare providers. Our survey is designed to answer questions that are important to patients. What procedures are associated with harm? Why? What are the common factors patients see as leading to harm, and how do healthcare providers respond? This is a way for patients to report their experience as they have lived it, and to know that their report will be counted.
The survey is divided into sections covering various categories of medical adverse events. Answers in the relevant categories can be as brief or as lengthy as you would like them to be. Boxes simply can be checked but we encourage you to use the narrative sections to share vital details, observations and suggestions. Those who prefer not to fill out a survey can click through and leave a full narrative in the space provided at the end. If you have had more than one unrelated adverse event or hospitalization, you are welcome to fill out more than one survey. In addition, this survey is both historical and ongoing. Adverse events can be reported from any time period.
Unless you explicitly give it to us, we do not collect your computer IP number, contact information, or location. Reports are tallied by state or province where that information is available, and data will be aggregated nationally. With the understanding that this is a voluntary survey and does not pretend to be scientific, we make our findings available at www.empoweredpatientcoalition.org.