This survey has been designed by the Standards of Care Task Force of the Lance Armstrong Foundation’s LiveStrong Young Adult Alliance. Its purpose is to assess how oncology care is currently delivered, or planned to be delivered, to adolescents and young adult cancer patients (roughly between the ages 15-39 years) at institutions like yours. The Alliance was formed to help implement recommendations set forth by the joint NCI-LAF-sponsored Adolescent Young Adult Oncology Progress Review Group.
The information you provide will inform and guide the task force in identifying the unique medical and psychosocial needs of this adolescent/young adult population.
The information you and your colleagues provide will be summarized in the form of a “white paper” on this subject, and will be made available to you and to the general medical and advocacy communities. The information also will initiate the formation of a database on models of care for adolescent and young adult patients. The database will be maintained on the LiveStrong Young Adult Alliance’s “MyLiveStrong” website, and will be updated annually.
Please feel free to forward this message and link to the survey to a colleague at your institution who you feel is best equipped to answer questions about clinical care for young adult oncology patients at your institution.
Thank you for your consideration, and please contact us if you have any further questions.
Stuart Siegel, MD, Co-Chair
Brad Zebrack, PhD, MSW, Co-Chair
Standards Task Force
Brandon Hayes-Lattin, MD, Co-Chair
Randi Rosenberg, Co-Chair
Lance Armstrong Foundation Young Adult Alliance