This questionnaire aims to gather information and experiences from people with Chronic Fatigue Syndrome (CFS), CFIDS and Myalgic Ecephalomyelitis (ME) in view of the forthcoming publication of a book dealing with these subjects. Given the scarcity of data on CFS/CFIDS/ME, your contribution will be of great value to further the understanding of a condition that is all too often overlooked by the medical community.
The objectives of this international survey are to raise the public’s awareness of CFS/CFIDS/ME but also that of local, national and international institutions, as well as urging the medical community to carry out further research on the matter. A higher visibility is often the first step towards a greater understanding and better treatment.
I would thus be extremely grateful if you could please fill in this questionnaire, at your own time and pace. You can also request an email copy of this questionnaire in Word format at the following address: firstname.lastname@example.org There is no need to indicate your full name in your questionnaire—your first name or even, if you prefer, a fictitious name is sufficient.
As I believe that CFS/CFIDS/ME require a global approach in terms of information and research, the questionnaire is also available in French, Spanish and Italian, and will be sent to CFS/CFIDS/ME associations all over the world with the aim of gathering the widest possible sample of experiences from those affected by CFS/CFIDS/ME.
The questionnaire and resulting book focus on the experience of the CFS/CFIDS/ME patient (e.g. communication issues, impact on the patient’s life, etc) rather than on the clinical aspects of his or her condition. With the aim of obtaining the widest possible range of experiences, I invite you to forward this questionnaire to other people affected by CFS/CFIDS/ME or their family and/or carers.
This questionnaire is available both in a Word and PDF format, the first being suitable for typing, while the second can be printed off, filled in by hand and returned to me by email or post. The questionnaire comprises many questions, but any can be omitted, should you wish so or should you be too tired to proceed. However, please bear in mind that the more specific and detailed your answers, the greater will be your contribution to making CFS/CFIDS/ME known and understood.
Thank you very much for your time and effort to fill in this questionnaire. Should you have any question and/or suggestion concerning the questionnaire or book, please do not hesitate to contact me.
With my very best wishes,
Dr Herman Salton
LLB/LLM (Italy), MPhil (Oxford), PhD (Auckland)
IMPORTANT: Please make sure you finish the whole questionnaire, which is made up of ten questions. Many thanks!