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A paediatric project focused on
improving palliative care for infants,
children, and young people
 
The success of this project relies on hearing what matters to you and your family.
Your experiences as a consumer or carer are the best evidence we will have to drive improvement in the quality of, and access to, palliative care throughout Australia.
 
Palliative Care Australia (PCA) and Paediatric Palliative Care Australia and New Zealand (PaPCANZ) are working together with an experienced group of professionals to deliver the Paediatric Palliative Care National Action Plan to improve palliative care for infants, children and young people and their families. 
 
Central to the project is hearing what matters to you and your family. Your experiences, as a consumer or carer, are the best evidence we will have to drive improvement in the quality of, and access to, palliative care throughout Australia.
 
Through completing this survey consumers can nominate to participate in consultation opportunities through either group or one-on-one consultations or online survey. Once consultation registrations are open the project team will invite consumers who have expressed an interest in participating to register for one of the consultation opportunities.
 
Participation in this research is voluntary. If you don’t wish to take part, you don’t have to.

You can withdraw from the consultation at any time. If you decide to take part and later change your mind, you are free to withdraw from the project at any stage.
 
Bellberry Human Research Ethics Committee has approved the Paediatric Palliative Care National Action Plan Project.
 
Any personal information will be used only for the purpose of your participation in the consultation and in accordance with the PCA Privacy Policy which can be found at palliativecare.org.au/palliative-care-australia-privacy-policy.
 
Thankyou for your interest
 

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* 1. Which best represents your role in the Paediatric Palliative Care journey

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* 2. What state do you live in

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* 3. Which best describes the geographic area where you currently live

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* 4. Where was palliative care received? Please indicate where the most amount of time was spent for care. 
(1 being where the most care was received and 7 being where the least amount of care was received)

  Hospital Hospice Home Community Palliative Care specialist service TeleHealth General Practice
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* 5. Which topic best represents your area of interest in Paediatric Palliative care

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* 6. What drives you to contribute to the consultation opportunities within the Paediatric Palliative Care National Action Plan Project.

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* 7. Based on your personal experience what do you see as the biggest challenges, and opportunities for change in paediatric  palliative care

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* 8. Please indicate how often you would like to be involved

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* 9. In which way would you prefer to provide input into activities within the Paediatric Palliative Care National Action Plan?

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* 10. Please indicate which best describes your preferred method of contribution

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* 11. Please indicate which activities within the project you would like to be part of

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* 12. If you would like to participate in the Paediatric Palliative Care project activities please leave your best contact details. 
By leaving your contact details we will be able to keep in touch and involve you in the project activities

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