Survey Introduction

We invite you to take part in a survey which is a component of an Honours research project by Andrea Lyon conducted at Murdoch University. The purpose of this survey is to determine how you feel about the language used by the wider community when describing people with a mental illness. For instance, it may be said that “this is the patient from the mental health community” or “the consumer with lived experience of mental illness” or “a service user from the community”.

We are interested in knowing how you would like to be referred to because for some people certain language can be stigmatising/negative or empowering/positive. The questions in this survey will therefore include questions relating to stigma and empowerment. However, we make no assumption that stigma is present or that empowerment is not.
 
The survey is comprised of a terminology questionnaire, the Empowerment scale by Rogers et al. (1997), the Brief version of the Internalized Stigma of Mental Illness (ISMI) scale by Boyd, Otilingam & Deforge (2014) and demographic questions.
 
If you would like to participate, please read the following information and then you may proceed with a confidential survey.

Would you like to participate in this study?
If you have received a mental health diagnosis by a health professional and are 18 years or older we would like you to participate.

What this study involves
We would be pleased if you could complete the questionnaire which consists of four sections, which should take approximately 15 - 30 minutes to complete. For each section, please only answer the questions which you feel comfortable completing.
 
What if I have a question about the study?
It is important that you understand the purpose of this study and what is being requested of you. Please feel free to ask any questions to the supervising researcher Dr. Sheila Mortimer-Jones, Email: S.Mortimer-Jones@murdoch.edu.au and be sure that all your questions have been answered to your satisfaction before you agree to participate.

Possible risks
It is not compulsory to participate is this study. You can withdraw your submission at any time prior to the submission of the
survey. However, as your identity is unknown to us it is not possible to withdraw your consent once the questionnaire has been submitted.

There are no anticipated risks. However, it is acknowledged that some of the questions may elicit feelings of upset for some
people. If any of these questions cause you distress please contact your mental health support worker if you have one, or online support services such as Lifeline 13 11 44 or Beyond Blue 1300 22 4636.

An example of the questions which may be triggering for you include:
a) Questions which ask if you agree with some of the negative stereotypes associated with having a mental illness, e.g. violence.
b) Questions which ask you if you believe that your mental illness has affected your ability to achieve in life.

If you believe that these or similar questions will cause you to have negative feelings or experience anxiety, and you wish to participate, please ensure that you have a supportive person available to express your feelings to.

Possible benefits

It is anticipated that identifying and using acceptable terms to refer to people with a mental illness will be empowering for the mental health community.

What happens to the results?
The results of the overall study may be presented at conferences, and they may also be presented in published articles. You will not be identified individually in any reports that use material from the survey questionnaire as all responses are anonymous. Only research staff involved in the project will have access to the data. Copies of the questionnaire data will be stored on a Murdoch University password-protected database for five years.

Your privacy
Your privacy is very important. Whether you elect to participate or not will be kept entirely confidential. Taking part in this study is completely voluntary and you can stop taking part at any time without explanation. Your responses and contact details will be strictly anonymous and your identity unknown. As your identity is unknown to us it is not possible to withdraw your consent once the questionnaire has been submitted.

Results

Once we have analysed the information from this study we will provide a summary of our findings on the Murdoch School of Health Professions research website http://www.murdoch.edu.au/School-of-Health-Professions/Our-Research/Nursing-Research/

In addition, the results of the overall study may be presented at conferences, and they may also be presented in published articles. You will not be identified individually in any reports as all responses are anonymous.

Ethical issues
This project has been approved by the Murdoch University Human Research Ethics Committee (approval number 2018/175). If you have any reservation or complaint about the ethical conduct of this research, and wish to talk with an independent person, you may contact Murdoch University’s Research Ethics Office Tel. 08 9360 6677 or e-mail ethics@murdoch.edu.au. Any issues you raise will be treated in confidence and investigated fully, and you will be informed of the outcome.



 

Thank you for your time.



Question Title

1. If you consent to participating in this survey please click YES

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