Skip to content

PoTS Passport - Feedback

Thank you for taking the time to leave your feedback.

The PoTS Passport aims to ensure patients with PoTS receive safe, informed, and appropriate care in medical settings by clearly communicating their baseline symptoms, physiological needs, and condition-specific adaptations required alongside treatment for other health issues.

The PoTS Passport is not a diagnostic tool. Instead, it is a practical support document that can be used during outpatient appointments, hospital admissions, surgical procedures, dental treatment, and many other healthcare interactions.

We are piloting this idea and plan to adapt and amend the Passport based on your feedback to ensure it is as helpful as possible.

It may be helpful to look at our FAQs on the PoTS Passport page before leaving your feedback: ADD LINK TO PAGE.
1.Are you a...?
2.How useful do you find this passport? 1 star = not at all useful, 5 star = very useful.
3.What changes would you like to see us make to improve the passport?
4.Is there anything else you would like to tell us?
5.If you are happy to discuss your answers futher, please leave your email address.
6.We may use quotes or comments from this feedback on our social media or funding applications. Do you give your consent for us to do so? This would all be anonymised.
Thank you for taking the time to complete this survey. The best way to stay up to date is to become a member of PoTS UK. It is free to join. Visit: https://www.potsuk.org/become_a_member

Data Privacy Statement
What we do with the information that we gather from survey responses.
In obtaining your cooperation to participate in the survey, we undertake not to mislead you in any way about the nature of the research we are conducting, the way in which the data is collected and the use that will be made of the survey results.
All of the information that you provide will be treated as confidential and will only be used for research purposes. Your comments will not be identified as belonging to you, instead they will be combined with those gathered from other survey participants, and will be analysed as part of a group. We do not use any of the information you provide for direct marketing or other non-research activities.
If we ask you for personal information that enables you to be identified - e.g. your name and e-mail address we will clearly state why we are asking for it and for your permission to use it for that purpose. For example, it might be to inform you of future surveys, to see if you would be happy to share your story or to inform you of future events.
Your participation is voluntary. You are entitled to ask that part, or all, of the record of your involvement in the survey be deleted or destroyed. Please contact enquiries@potsuk.org if this is the case or you have any questions regarding our data privacy.