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* 1. Do you know when and why would a deaf child be referred for genetic testing?

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* 2. Who makes the referral?

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* 3. Do you know, or could you count how many children, aged 16 and under, have a diagnosis of Usher Syndrome in your Health Board or Service area?

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* 4. Once a diagnosis of Usher Syndrome is given, what information do you give to families?

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* 5. Are you aware of any specialist post-diagnostic support for children and families living with Usher Syndrome in your area/Scotland?

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* 6. Do you have information resources to give to newly diagnosed children and families? If not, would you like some information and resources?

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* 7. Please provide your name/title

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* 8. Email

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* 9. Would you be willing to have a follow-up one-to-one interview?

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* 10. Would you like to take part in future on-line project discussion workshops?

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