1.Do you know when and why would a deaf child be referred for genetic testing?

2.Who makes the referral?

3.Do you know, or could you count how many children, aged 16 and under, have a diagnosis of Usher Syndrome in your Health Board or Service area?

4.Once a diagnosis of Usher Syndrome is given, what information do you give to families?

5.Are you aware of any specialist post-diagnostic support for children and families living with Usher Syndrome in your area/Scotland?

6.Do you have information resources to give to newly diagnosed children and families? If not, would you like some information and resources?

7.Please provide your name/title

8.Email

9.Would you be willing to have a follow-up one-to-one interview?

10.Would you like to take part in future on-line project discussion workshops?