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Diagnosis and beyond
2.
Diagnosis
29%
*
1.
How old was your child when formally diagnosed with Autism Spectrum Disorder?
(Required.)
1
2
3
4
5
6
7
8
older
*
2.
Was the diagnosis given by ...
(Required.)
a health professional
an educational professional
a multidisciplinary team
other (please specify)
*
3.
How long did it take in total to get a diagnosis (from initial request)
(Required.)
0-6 months
7 months to one year
2 years
3 years
4 years
5 years plus
Comment if you would like to hightlight issues with the process
*
4.
Did you get a diagnosis privately
(Required.)
Yes
No
if you answer is yes please explain why and how much this cost.
*
5.
How many appointments did you attend during the process of diagnosis
(Required.)
1
2
3
4
5
6
7
8
9
10plus
N/A
With your GP
1
2
3
4
5
6
7
8
9
10plus
N/A
With a hospital or community based paediatrician
1
2
3
4
5
6
7
8
9
10plus
N/A
With an educational professional
1
2
3
4
5
6
7
8
9
10plus
N/A
With a multi disciplinary team
1
2
3
4
5
6
7
8
9
10plus
N/A
6.
On a scale of one to ten with one being the lowest, rate your satisfaction with the help/support given to you during the diagnosis process
1
2
3
4
5
6
7
8
9
10
N/A
by your GP
1
2
3
4
5
6
7
8
9
10
N/A
by your hospital or community based paediatrician
1
2
3
4
5
6
7
8
9
10
N/A
by health visitor
1
2
3
4
5
6
7
8
9
10
N/A
by teacher
1
2
3
4
5
6
7
8
9
10
N/A
by nursery staff
1
2
3
4
5
6
7
8
9
10
N/A
by head teacher
1
2
3
4
5
6
7
8
9
10
N/A
by senco
1
2
3
4
5
6
7
8
9
10
N/A
by multidisciplinary team
1
2
3
4
5
6
7
8
9
10
N/A
*
7.
How satisfied were you with the process which led to a diagnosis? (on a scale of 1 - 10 with 10 being very satisfied)
(Required.)
1
2
3
4
5
6
7
8
9
10
N/A
1
2
3
4
5
6
7
8
9
10
N/A
8.
Did you get informal help from (tick all that apply)
Parent group
NAS
Peach
IPSEA
ACE
Parent Partnership
Another parent
Ambitious About autism
Other (please specify)
*
9.
Were you given information following diagnosis on the services and support listed . Please tick all that apply
(Required.)
Behavioural interventions (EIBI /ABA)
Early Bird
Local Charities
National Autistic Society
Nothing
Occupational health
Portage
Research Autsim
SEN advice school/nursery
Specailist autism support from health
Specialist autism support from education.
Speech and language
Other please specify
*
10.
On a scale of one to ten with one being low rate your satisfaction with the following
(Required.)
1
2
3
4
5
6
7
8
9
10
N/A
The usefulness of the information you received
1
2
3
4
5
6
7
8
9
10
N/A
The knowledge of the person who gave it to you
1
2
3
4
5
6
7
8
9
10
N/A
Your understanding of what you needed to do next
1
2
3
4
5
6
7
8
9
10
N/A
Your understanding of what outcomes to expect for you child
1
2
3
4
5
6
7
8
9
10
N/A
add your comments here
*
11.
Did you use the information given at diagnosis to access provision
(Required.)
yes
No
What was/is that provision
12.
Do you still have that provision
Yes
No
I don't have any provision
