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Support for Australians affected by eczema
1.
Which of the following describes you?
I am an adult living with eczema
I am under 18 years and living with eczema
I am the parent/carer of a child or adolescent with eczema
I am the partner/parent/sibling of an adult with eczema
Other (please specify)
2.
Who are your main healthcare providers in relation to eczema?
Please select all that apply.
Dermatologist
Immunologist or Allergist
Paediatrician
General Practioner
Nurse
Nil
Other (please specify)
3.
How did you first hear about Eczema Support Australia
.
From our health provider/doctor
From a friend
Through social media
From watching/reading the news
Internet search
Other (please specify)
4.
For which of the following reasons have you connected with Eczema Support Australia?
Please select all that apply.
To better understand the causes and triggers of eczema
To better understand ways to manage eczema
To access support not available or affordable from a doctor
To meet and connect with other peole living wth eczema
To hear and share experiences of living with eczema
To support advocacy calls for improved access to treatment
Other (please specify)
5.
We currently provide the following services. Please rate how useful you feel these services are to people impacted by eczema.
A Facebook community to share information and connect people affected by eczema
Very useful
Somwhat useful
Not useful at all
Free membership which includes a welcome kit
Very useful
Somwhat useful
Not useful at all
Face to face support group meetings (pre COVID19)
Very useful
Somwhat useful
Not useful at all
Access to a registered nurse
Very useful
Somwhat useful
Not useful at all
Subsidised psychological support sessions
Very useful
Somwhat useful
Not useful at all
A kit on managing eczema at school or early learning centres
Very useful
Somwhat useful
Not useful at all
A closed Facebook group for families and a separate group for adults with eczema
Very useful
Somwhat useful
Not useful at all
Advocacy for awareness and improved access to treatment and support services
Very useful
Somwhat useful
Not useful at all
6.
Eczema Support Australia is looking to increase its services. Please rate how useful you believe the following resources and materials would be to people impacted by eczema.
Information about clinical trials and recruitment
Very useful
Somwhat useful
Not useful at all
Webcast meetings with a specialist answering your questions
Very useful
Somwhat useful
Not useful at all
Virtual support group meetings (eg using Zoom)
Very useful
Somwhat useful
Not useful at all
Public awareness campaigns about the realities of eczema
Very useful
Somwhat useful
Not useful at all
Information to support people living with eczema (available through website and print format)
Very useful
Somwhat useful
Not useful at all
Personal stories shared by people living with eczema
Very useful
Somwhat useful
Not useful at all
7.
Which information topics would you find useful?
Eczema and sleep
Very useful
Somewhat useful
Not useful at all
Eczema and mental health
Very useful
Somewhat useful
Not useful at all
When to see a Dermatologist
Very useful
Somewhat useful
Not useful at all
Eczema and seasonal changes
Very useful
Somewhat useful
Not useful at all
Debunking eczema myths
Very useful
Somewhat useful
Not useful at all
Clinical trials and recruitment
Very useful
Somewhat useful
Not useful at all
Eczema and life stages (eg childhood, adolescents, adulthood)
Very useful
Somewhat useful
Not useful at all
Treatment options
Very useful
Somewhat useful
Not useful at all
8.
Please provide any comments about the support services you would like to see for Australians impacted by eczema.
9.
Gender
Male
Female
Prefer not to say
Other (please specify)
10.
State or Territory
New South Wales
Victoria
Queensland
Western Australia
Tasmania
South Australia
Northern Territory
Australian Capital Territory
11.
Location
Metropolitan
Regional
12.
Age group
Under 18 years
18-30 years
31 - 45 years
46-59 years
60+ years