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Type 1 diabetes survey
Thank you so much for being willing to share. I’m a physician and T1D parent exploring whether a more proactive, continuous support model would reduce the burden on families. This is anonymous and takes ~3 minutes. I really value your perspective.
1.
How old is your child with T1D?
<5
5–8
9–12
13–17
My adult child has T1D
I am an adult with T1D
2.
How long since the diagnosis?
One year
2-3 years
4-6 years
7+ years
3.
Between endo visits, how supported do you feel in managing day-to-day insulin decisions?
1 (not supported at all)
2
3 (somewhat supported)
4
5 (very supported)
4.
What is the most cognitively or emotionally draining part of daily management? (Select up to 4)
Interpreting CGM trends
Deciding when/how much to correct
Overnight lows
Illness protocols
School coordination
Fear of long-term complications
Waiting for callback from care team
Something else (free text)
5.
If a pediatric diabetes clinician proactively reviewed your child’s data weekly and reached out with adjustments or guidance before problems escalated, how helpful would that be?
1 (not helpful)
2
3 (somewhat helpful)
4
5 (extremely helpful)
6.
How helpful would it be if you had instant access via secure messaging to a diabetes educator nurse?
1 Not helpful
2
3 somewhat helpful
4
5 Very helpful
7.
Would you consider paying out-of-pocket for the previously mentioned access?
No
Maybe
Yes
8.
If yes or maybe, what feels like a reasonable monthly cost?
<$100
$100–200
$200–300
$300–500
$500
9.
Do you think this type of access would have been more helpful in your first year or two after diagnosis?
Definitely
Maybe
No