KD Patient education/knowledge

We are gathering information about your knowledge, or lack thereof, during your child's hospitalization and discharge with KD.  Our plan is to use this as a guide to develop educational materials for during hospitalization and after discharge and set expectations for the care of your KD child. 

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* 1. What information would have been helpful to you when you arrived with your child in the emergency department or were admitted to the hospital as they considered or diagnosed KD?

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* 2. What information during your hospital stay would have helped you understand the treatments/test your child received?

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* 3. Did your doctors explain to you what to expect after discharge from the hospital?

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* 4. Were follow-up appointments made for you while you were in the hospital before discharge?

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* 5. How soon after discharge from the hospital were you to follow-up with Cardiology?

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* 6. How soon after discharge from the hospital were you to follow-up with Infectious Disease?

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* 7. How soon after discharge from the hospital were you to follow-up with your Pediatrician

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* 8. Were you provided any information about normal and abnormal symptoms your child may experience after discharge, such as aches/pains, energy level, etc?

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* 9. After discharge, were you informed of what symptoms to look for if KD was returning?

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* 10. What other information would help remove the "fear of the unknown" about this disease process and your child's condition?

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