The peak genetic, undiagnosed and rare disease (GUARD) groups, representing over one hundred patient support organisations in Australia, would like you to take part in a short survey about how COVID 19 (coronavirus) is affecting you and your family. The purpose is to understand the type of issues that you are having and how significant they are during this period.
Your responses are anonymous and will remain confidential. We will use summarised information to provide targeted education, advocacy, support and services on behalf of the genetic, undiagnosed and rare disease community. You must live in Australia and be over 18 years of age to participate. The survey should only take 10 minutes to complete and will close on Wednesday 27 May 2020.