One Herd: A New Content Campaign To Give A Voice To All

Be Heard. Share Your Voice.

One Herd is an innovative and integrative way of using content, stories, and community to better understand and effectively address health disparities in access to care for the medically underserved. By completing this survey, you are helping us set the foundation for this initiative.

All questions with an * are required.

Questions? Please contact info@elephantsandtea.com

Section 1: Demographics and Location

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* 1. Where are you at in your cancer treatment?

In treatment

<1 year out of treatment

2-4 years out of treatment

5-9 years out of treatment

10+ years out of treatment

Undergoing continuous treatment

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* 2. What was your age at diagnosis?

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* 3. Where do/did you get your care?

Large cancer center or hospital

Comprehensive cancer center

Small cancer center or hospital

Community cancer center or hospital

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* 4. Which of the following race/ethnicity best describes you?

American Indian or Alaska Native

Asian or Asian American

Black or African American

Hispanic or Latino

Middle Eastern

Native Hawaiian or other Pacific Islander

White

Other (please specify)

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* 5. Gender: How do you identify?

Cisgender Woman

Cisgender Man

Non-binary

Transgender Woman

Transgender Man

Prefer to self-describe, below

Self-describe:

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* 6. What is your sexual orientation?

Asexual

Bisexual

Gay

Heterosexual or straight

Lesbian

Pansexual

Queer

None of the above, please specify

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* 7. Which of the following best describes your current relationship status?

Cohabiting with a significant other or in a domestic partnership

Divorced

Married

Separated

Single, never married

Widowed

Prefer not to answer

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* 8. What type of religion do you practice? If you don't practice religion, please feel free to skip this question

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* 9. Was/is spiritual/religious support available to you at your treatment center?

Yes

I don't know

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* 10. If yes, did you utilize that support and was it helpful to you?

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* 11. Where are you located?

Rural

Suburban

Urban

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* 12. Select all that apply for transportation to your treatments

I used my own vehicle

I used ride sharing (Uber, Lyft, etc.)

Public transportation (Bus, Train, etc.)

I used taxis

I walked

I used a bicycle

I got a ride from a family member

I got a ride from a friend

I used a nonprofit service

Other (please specify)

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* 13. Did you have to relocate back to your parents’ home for treatment?

Yes

Section 2: Care Team

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* 14. How satisfied are you/were you with your care team?

Very satisfied

Satisfied

Neither satisfied nor dissatisfied

Dissatisfied

Very dissatisfied

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* 15. Describe your experience with your care team:

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* 16. Have you experienced any bias from your care team during your treatment? (Bias definition is prejudice in favor of or against one thing, person, or group compared with another, usually in a way considered to be unfair)

Yes

I don't know

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* 17. Have you felt discriminated against during your treatment? (Discrimination definition is the unjust or prejudicial treatment of different categories of people, especially on the grounds of ethnicity, age, sex, or disability.)

Yes

I don't know

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* 18. Do/Did you feel your treatment would have been affected because you spoke up about the discrimination?

Yes

I don't know

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* 19. Anything you'd like to share when it comes to any bias or discrimination that you experienced?

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* 20. Did you feel at ease with your care team?

Yes

I don't know

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* 21. Was there ever a situation in which you felt unsafe? If yes, please explain.

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* 22. Was a second opinion an option for you?

Yes

I don't know

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* 23. Do you feel supported at home?

Yes

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* 24. Who was your main caregiver?

Friend

Grandparent

Parent

Partner/Spouse

Sibling

Other (please specify)

Section 3: Social Support

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* 25. Do/Did you feel connected with your peers while going through treatment?

Yes

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* 26. What organizations were the most helpful in providing social/emotional support?

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* 27. What organizations were the most helpful in providing informational support?

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* 28. Have you attended in-person events focused on the cancer community?

Yes

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* 29. What are those in-person events?

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* 30. Did you develop new friendships or resources from those in-person events?

Yes

Did not attend an in-person event

Section 4: Fertility

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* 31. Upon being diagnosed, was fertility ever part of the discussion?

Yes

I don't remember

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* 32. Were you presented with fertility preservation options?

Yes

I don't remember

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* 33. How much information about fertility preservation were you given?

A great deal

A lot

A moderate amount

A little

None at all

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* 34. Did you talk to you partner or parent(s) about fertility preservation options?

Yes

Does not apply to me

None of the above

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* 35. Was your partner or parent(s) supportive of your decision toward fertility preservation?

Yes

Does not apply to me

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* 36. Where do you stand today in regards to fertility preservation (frozen sperm, eggs preservation, etc.)?

Section 5: Mental Health

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* 37. Were you provided information on mental health support?

Yes

I don't remember

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* 38. Were you provided support group options?

Yes

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* 39. Are you seeing a therapist now?

Yes

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* 40. If so, were you seeing a therapist prior to your cancer diagnosis?

Yes

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* 41. Do you prefer one-on-one support or larger support group settings?

One-on-one support

Larger support group settings

I do not have a preference

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* 42. Have you been honest in the past about where you were mentally and your clinicians/support team didn't acknowledge it? (tablet at check in, etc.)

Section 6: Employment, Insurance, and Financial Toxicity

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* 43. Were you presented with financial support options to go with fertility preservation options?

Yes

I don't remember

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* 44. Are you currently employed?

Yes

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* 45. Were you employed before your diagnosis?

Yes

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* 46. What is your current health insurance status?

Medicaid /Supplemental Security Income (SSI)

Medicare

Military (Veterans Administration)

Private Insurance

No Insurance

Unknown

Other (please specify)

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* 47. After your diagnosis, did your employment change? If so, how?

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* 48. Did you experience financial toxicity? (Financial toxicity describes the negative impact medical expenses can have on patients in terms of their health related quality of life, leading to negative mental and physical effects as well as, in some cases, bankruptcy, loss of job or income, or even homelessness.)

Yes

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* 49. Did you struggle with everyday expenses?

Yes

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* 50. In what areas did you struggle financially?

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* 51. Did you have to sell or stop any special items/services? If so, what?

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* 52. Did family or friends have to help pay your bills and treatment costs?

Yes

Section 7: Storytelling

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* 53. Have you shared your ‘cancer story’ with friends/acquaintances before?

Yes

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* 54. Have you shared your ‘cancer story’ with strangers before?

Yes

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* 55. Have you shared your ‘cancer story’ on text-based social media?

Yes

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* 56. Have you shared your story in recorded format (video, YouTube, TikTok, etc.)?

Yes

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* 57. How difficult is it to put your story into words?

Very Easy

Easy

Somewhat Easy

Neutral

Somewhat Difficult

Difficult

Very Difficult

I have not shared my story

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* 58. Would you be willing to share your perspective to help further support fellow cancer survivors in similar situations?

Yes

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* 59. Please enter your email address if you'd like someone from Elephants and Tea to contact you in regards to sharing your story as part of the One Herd Campaign