This survey has been created to collect information about families’ experiences of childhood kidney disease and its social, emotional and financial impacts on the whole family. It is intended for parents and carers to share their views. The survey is anonymous, and we cannot identify you from your responses. We will compile the information into a report to be shared with Members of Parliament and members of the House of Lords at our parliamentary event, "Championing Children’s Kidney Care in Parliament: Challenges and Opportunities", in November. The event will call for equity in children’s kidney care and greater recognition of families’ needs. It is vital that MPs and Lords hear from people with lived experience.
We will also share the results from the survey on our websites and in presentations. We may include quotes from comments submitted in the survey, but we will not identify you or anyone else in doing so. Please do not include any information that would identify you, a location, or an individual healthcare professional. Please do not complete the survey if you are not happy for people outside of Kidney Care UK to read your anonymised comments.
The survey closes on Sunday 25th October 2026 and will take around 12 minutes to complete.
If you are completing the survey on behalf of someone else, the answers should be about the family, the child's condition, and their experiences and NOT you.
If you would like any support, please contact:
Kidney Care UK
Support line telephone number: 0808 801 00 00
Email: support@kidneycareuk.org
Many thanks for your help.
Best wishes
Kidney Care UK
