Summer 2019 Scientific Issues in MDM Poll Survey

	Completely Disagree	Somewhat Disagree	Neither Agree or Disagree	Somewhat Agree	Completely Agree
Patient involvement in the grant writing process leads to better science.	Patient involvement in the grant writing process leads to better science. Completely Disagree	Patient involvement in the grant writing process leads to better science. Somewhat Disagree	Patient involvement in the grant writing process leads to better science. Neither Agree or Disagree	Patient involvement in the grant writing process leads to better science. Somewhat Agree	Patient involvement in the grant writing process leads to better science. Completely Agree
Patient involvement in the grant reviewing process leads to better science.	Patient involvement in the grant reviewing process leads to better science. Completely Disagree	Patient involvement in the grant reviewing process leads to better science. Somewhat Disagree	Patient involvement in the grant reviewing process leads to better science. Neither Agree or Disagree	Patient involvement in the grant reviewing process leads to better science. Somewhat Agree	Patient involvement in the grant reviewing process leads to better science. Completely Agree
Grants in which patients are actively involved better serve end users.	Grants in which patients are actively involved better serve end users. Completely Disagree	Grants in which patients are actively involved better serve end users. Somewhat Disagree	Grants in which patients are actively involved better serve end users. Neither Agree or Disagree	Grants in which patients are actively involved better serve end users. Somewhat Agree	Grants in which patients are actively involved better serve end users. Completely Agree
In general, medical research projects should have a patient advisory panel.	In general, medical research projects should have a patient advisory panel. Completely Disagree	In general, medical research projects should have a patient advisory panel. Somewhat Disagree	In general, medical research projects should have a patient advisory panel. Neither Agree or Disagree	In general, medical research projects should have a patient advisory panel. Somewhat Agree	In general, medical research projects should have a patient advisory panel. Completely Agree
Patients representatives are often quite different from the ‘average’ patient.	Patients representatives are often quite different from the ‘average’ patient. Completely Disagree	Patients representatives are often quite different from the ‘average’ patient. Somewhat Disagree	Patients representatives are often quite different from the ‘average’ patient. Neither Agree or Disagree	Patients representatives are often quite different from the ‘average’ patient. Somewhat Agree	Patients representatives are often quite different from the ‘average’ patient. Completely Agree
Patient participation in scientific conferences like SMDM should be encouraged.	Patient participation in scientific conferences like SMDM should be encouraged. Completely Disagree	Patient participation in scientific conferences like SMDM should be encouraged. Somewhat Disagree	Patient participation in scientific conferences like SMDM should be encouraged. Neither Agree or Disagree	Patient participation in scientific conferences like SMDM should be encouraged. Somewhat Agree	Patient participation in scientific conferences like SMDM should be encouraged. Completely Agree
Patient reviewers should take part in the publication peer review process for work in my field.	Patient reviewers should take part in the publication peer review process for work in my field. Completely Disagree	Patient reviewers should take part in the publication peer review process for work in my field. Somewhat Disagree	Patient reviewers should take part in the publication peer review process for work in my field. Neither Agree or Disagree	Patient reviewers should take part in the publication peer review process for work in my field. Somewhat Agree	Patient reviewers should take part in the publication peer review process for work in my field. Completely Agree
Patient representatives need to be well-versed in scientific methodology.	Patient representatives need to be well-versed in scientific methodology. Completely Disagree	Patient representatives need to be well-versed in scientific methodology. Somewhat Disagree	Patient representatives need to be well-versed in scientific methodology. Neither Agree or Disagree	Patient representatives need to be well-versed in scientific methodology. Somewhat Agree	Patient representatives need to be well-versed in scientific methodology. Completely Agree

Completely Disagree

Somewhat Disagree

Neither Agree or Disagree

Somewhat Agree

Completely Agree

Patient involvement in the grant writing process leads to better science.

Patient involvement in the grant writing process leads to better science. Completely Disagree

Patient involvement in the grant writing process leads to better science. Somewhat Disagree

Patient involvement in the grant writing process leads to better science. Neither Agree or Disagree

Patient involvement in the grant writing process leads to better science. Somewhat Agree

Patient involvement in the grant writing process leads to better science. Completely Agree

Patient involvement in the grant reviewing process leads to better science.

Patient involvement in the grant reviewing process leads to better science. Completely Disagree

Patient involvement in the grant reviewing process leads to better science. Somewhat Disagree

Patient involvement in the grant reviewing process leads to better science. Neither Agree or Disagree

Patient involvement in the grant reviewing process leads to better science. Somewhat Agree

Patient involvement in the grant reviewing process leads to better science. Completely Agree

Grants in which patients are actively involved better serve end users.

Grants in which patients are actively involved better serve end users. Completely Disagree

Grants in which patients are actively involved better serve end users. Somewhat Disagree

Grants in which patients are actively involved better serve end users. Neither Agree or Disagree

Grants in which patients are actively involved better serve end users. Somewhat Agree

Grants in which patients are actively involved better serve end users. Completely Agree

In general, medical research projects should have a patient advisory panel.

In general, medical research projects should have a patient advisory panel. Completely Disagree

In general, medical research projects should have a patient advisory panel. Somewhat Disagree

In general, medical research projects should have a patient advisory panel. Neither Agree or Disagree

In general, medical research projects should have a patient advisory panel. Somewhat Agree

In general, medical research projects should have a patient advisory panel. Completely Agree

Patients representatives are often quite different from the ‘average’ patient.

Patients representatives are often quite different from the ‘average’ patient. Completely Disagree

Patients representatives are often quite different from the ‘average’ patient. Somewhat Disagree

Patients representatives are often quite different from the ‘average’ patient. Neither Agree or Disagree

Patients representatives are often quite different from the ‘average’ patient. Somewhat Agree

Patients representatives are often quite different from the ‘average’ patient. Completely Agree

Patient participation in scientific conferences like SMDM should be encouraged.

Patient participation in scientific conferences like SMDM should be encouraged. Completely Disagree

Patient participation in scientific conferences like SMDM should be encouraged. Somewhat Disagree

Patient participation in scientific conferences like SMDM should be encouraged. Neither Agree or Disagree

Patient participation in scientific conferences like SMDM should be encouraged. Somewhat Agree

Patient participation in scientific conferences like SMDM should be encouraged. Completely Agree

Patient reviewers should take part in the publication peer review process for work in my field.

Patient reviewers should take part in the publication peer review process for work in my field. Completely Disagree

Patient reviewers should take part in the publication peer review process for work in my field. Somewhat Disagree

Patient reviewers should take part in the publication peer review process for work in my field. Neither Agree or Disagree

Patient reviewers should take part in the publication peer review process for work in my field. Somewhat Agree

Patient reviewers should take part in the publication peer review process for work in my field. Completely Agree

Patient representatives need to be well-versed in scientific methodology.

Patient representatives need to be well-versed in scientific methodology. Completely Disagree

Patient representatives need to be well-versed in scientific methodology. Somewhat Disagree

Patient representatives need to be well-versed in scientific methodology. Neither Agree or Disagree

Patient representatives need to be well-versed in scientific methodology. Somewhat Agree

Patient representatives need to be well-versed in scientific methodology. Completely Agree

Question Title

* 2. How many of your past or present research projects directly involved patient representatives?

None

1-2

3-5

6-10

More than 10

Question Title

* 3. What roles have patient representatives had in your past or present research projects? Check all options that apply.

Advisory (e.g., Advisory panel)

Reviewer of designs (e.g., grant proposals, surveys, materials)

Reviewer of products (e.g., manuscripts)

Co-producer (e.g., active team member in at least some phases of the work, co-author)

Co-owner (e.g., participatory research processes)

Summer 2019 Scientific Issues in MDM Poll

Question Title

* 1. Please indicate to what extent you agree with the following statements.

Question Title

* 2. How many of your past or present research projects directly involved patient representatives?

Question Title

* 3. What roles have patient representatives had in your past or present research projects? Check all options that apply.

Question Title

* 4. Which of the SMDM subfields best describes your work?

Question Title

* 5. In what country do you work?

Question Title

* 6. Please suggest any topics you would like to see covered in future Scientific Issues in MDM polls: