Invisible Illness Market Research Survey

1.I have had experiences where I felt ignored/dismissed by medical professionals.

2.I was previously misdiagnosed, or at least one of my diagnoses has changed.

Yes

No

3.I feel that my current diagnosis/diagnoses satisfactorily explain(s) most of the symptoms I experience.

4.I have had experiences where I felt that the way medical professionals treated me was influenced negatively by attributes of my identity, such as my race, gender, sexuality, appearance, or weight.

5.My diagnosis/diagnoses have helped me in the following ways (select all that apply):

I have been offered medication or surgical procedures that have improved my health/wellbeing as a result of my diagnosis.

I have been advised by a medical professional on lifestyle changes or holistic remedies that have improved my health/wellbeing as a result of my diagnosis.

I have been able to conduct my own research and find solutions that have improved my health/wellbeing as a result of my diagnosis.

I have been able to connect with other people with similar struggles as a result of my diagnosis.

My diagnosis has validated my struggle and made me feel like my symptoms are not in my head, or it has helped me convince other people that my struggles are real.

My diagnosis has not been very helpful for me.

6.Medical professionals I encounter tend to be familiar with my condition(s) and know how to help me.

7.I feel confident that enough research is being done into my medical condition(s), and that treatment and understanding among medical professionals is improving.

8.I have had to advocate for myself in a medical setting, such as by requesting a specific test or medication.

Invisible Illness Market Research

Medical Experiences