Whole-body and brain MRI are essential tools for cancer screening in Li-Fraumeni syndrome (LFS), yet access remains inconsistent worldwide. In partnership with the George Pantziarka TP53 Trust, LFSA is launching this survey to capture the real experiences of the LFS community.
If you or your child have LFS or LFS-like syndrome, we encourage you to participate and share. The more voices we hear, the stronger our collective impact will be.
If you or your child have LFS or LFS-like syndrome, we encourage you to participate and share. The more voices we hear, the stronger our collective impact will be.
This survey is to collect information from people who have a diagnosis of Li Fraumeni syndrome (LFS) or LFS-Like syndrome about their access to annual surveillance whole-body and brain MRI (WBMRI). MRI scanning for cancer treatment, or follow-up to recent cancer treatment is NOT included. This is only for annual screening to catch cancers early – as part of the routine clinical management of LFS. If you have children with LFS or LFS-Like syndrome please enter information about their access to WBMRI as well.