PV Patient Survey

Welcome and Thank You.

Thank you for taking the time to participate in this important Quality of Life Patient Survey. Your experiences and insights matter deeply. By sharing your voice, you are helping to shape a better understanding of how health conditions and treatments impact daily life—not just in clinical terms, but in real, human ways.

Your input will guide advocacy groups in communicating improving care, enhancing support systems, and ensuring that patients’ lived experiences are at the heart of future decisions. We are truly grateful for your contribution to this vital work.