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HOPE programme for IIH - survey to make a case for funding to develop the course - Version 2

We are hoping to apply for funding so we can offer more support for people living with IIH.

To help us do this, we would really value your views. We want to hear from people across the IIH community, whether you have already taken part in the Hope Programme, started but not completed it, or have not taken part before.

Your answers will help us understand what support people need, what has worked well, what could be improved, and how we can make future support more useful and accessible.

The survey should only take a few minutes to complete. You do not need to share your name, and your feedback will help us build a stronger case for funding.
1.Have you taken part in the Hope Programme before?
If you answered No or you not sure that you have undertake the HOPE programme. Please answer questions 2-7.
If you answered Yes you completed the HOPE course please answer questions 8-11
If you answered Yes you started but did not complete HOPE programme please answer question 12-16
You do not need to answer the other questions.
2.How well do you feel you understand your IIH?
3.How confident do you feel managing your IIH?
4.How easy is it for you to access the support that you need for your II?
5.What type of support would help you most to live well with IIH? Tick all that apply
6.Would you be willing to access digital support to help you manage your IIH?
e.g. online resources, group sessions, webinars or messaging support
7.What types of digital support would you find useful? Tick all that apply
If you answered No or you not sure that you have undertake the HOPE programme. Please answer questions 2-7.
If you answered Yes you completed the HOPE course please answer questions 8-11
If you answered Yes you started but did not complete HOPE programme please answer question 12-16
You do not need to answer the other questions.
8.. How useful was the Hope Programme in helping you manage your IIH?
9.Did the Hope Programme help improve your confidence to manage your IIH day to day?
10.Which parts of the Hope Programme were most useful? Tick all that apply
11.If future IIH support was available, what format would you prefer?
If you answered No or you not sure that you have undertake the HOPE programme. Please answer questions 2-7.
If you answered Yes you completed the HOPE course please answer questions 8-11
If you answered Yes you started but did not complete HOPE programme please answer question 12-16
You do not need to answer the other questions.
12.. How useful was the Hope Programme in helping you manage your IIH?
13.Did the Hope Programme help improve your confidence to manage your IIH day to day?
14.Which parts of the Hope Programme were most useful? Tick all that apply
15.If future IIH support was available, what format would you prefer?
16.What were your reasons for not completing the HOPE programme?
Thank you for taking your time to complete the survey! We will update via IIH UK social media on the outcomes from this.
IIH UK Team