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Lupus Patient Survey
1.
How long did it take from your first symptoms to your lupus diagnosis?
Less than 6 months
6 months - 1 year
1 - 3 years
More than 3 years
2.
Were your symptoms initially taken seriously by healthcare professionals?
Yes, always
Sometimes
Rarely
Never
3.
Were you ever misdiagnosed with other conditions before receiving a lupus diagnosis?
Yes
No
If yes, please specify what condition(s) you were diagnosed with
4.
Do you feel your ethnicity, gender, or background affected how your symptoms were treated?
Yes
No
Not sure
If yes, please describe how your background may have influenced your experience.
5.
Do you feel your early symptoms were properly investigated (e.g., blood tests, referrals, follow-up)?
Yes, fully
Partly
No
Not sure
If not, what was missing or delayed?
6.
Before being diagnosed, how many different healthcare professionals did you see?
1
2 - 3
4 - 5
More than 5
7.
Did a healthcare professional ever suggest your symptoms were stress-related, psychological, or “in your head”?
Yes
No
Not sure
If yes, how did this affect your experience?
8.
If you are willing, which ethnic group do you identify with?
Black
Asian
Mixed
Other ethnic minority
White
Prefer not to say
9.
Is there anything else you would like to share about your experience with lupus diagnosis or care?