Skagit County P2P Special Needs Parent Survey 2019

We WANT your INPUT! Let us know how to support your journey raising a person with disabilities.

This survey will help us identify the needs of our community when designing events for Skagit County PARENTS of individuals with developmental disabilities and/or complex healthcare needs.

Please take 5 minutes to complete by JULY 3rd to be entered into a drawing for two movie tickets and four Children's Museum of Skagit County passes. Feel free to contact us with any questions at p2poffice@sparckids.org or 360.416.7570 x 2999. Thank you!

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* 1. Tell us about your child(ren) with varying needs and YOU.

What is his/her diagnosis?

How old is your child(ren) with disabilities/complex healthcare needs?

What city/town do you live in?

What is your family's primary language?

What is YOUR name?

What is YOUR e-mail address?

What is YOUR phone number?

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* 2. How do you gain information on disabilities and related issues? (Please rank first to last)

Medical Professionals, including therapists, such as SLP/PT/OT

Special Needs Agencies, i.e. Skagit County Parent to Parent, DDA, DVR, Informing Families, The Arc, etc.

Education Professionals (school)

Social Media (Facebook, Twitter, etc.) & Websites

Newspapers, medical journals, disability specific research articles

Other parents

Other

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* 3. Why do you participate in disability related activities/events? (Check all that apply)

Connect with other parents of individuals with disabilities

Receive/share information and/or resources for my child and/or family

Social/recreational opportunities for my family

To help other parents on a special needs journey

I don't participate in disability related activities/events

Other (please specify)

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* 4. Special needs parent events give me the opportunity to... (Check all that apply)

	Strongly Agree	Agree	Not sure	Disagree	Strongly Disagree
Feel connected to others/develop meaningful relationships with people who get it	Feel connected to others/develop meaningful relationships with people who get it Strongly Agree	Feel connected to others/develop meaningful relationships with people who get it Agree	Feel connected to others/develop meaningful relationships with people who get it Not sure	Feel connected to others/develop meaningful relationships with people who get it Disagree	Feel connected to others/develop meaningful relationships with people who get it Strongly Disagree
Express my joys, accomplishments, fears and concerns in a safe environment	Express my joys, accomplishments, fears and concerns in a safe environment Strongly Agree	Express my joys, accomplishments, fears and concerns in a safe environment Agree	Express my joys, accomplishments, fears and concerns in a safe environment Not sure	Express my joys, accomplishments, fears and concerns in a safe environment Disagree	Express my joys, accomplishments, fears and concerns in a safe environment Strongly Disagree
Benefit from other parents' experience and knowledge	Benefit from other parents' experience and knowledge Strongly Agree	Benefit from other parents' experience and knowledge Agree	Benefit from other parents' experience and knowledge Not sure	Benefit from other parents' experience and knowledge Disagree	Benefit from other parents' experience and knowledge Strongly Disagree
Gain skills/insights for raising an individual with disabilities &/or complex healthcare needs	Gain skills/insights for raising an individual with disabilities &/or complex healthcare needs Strongly Agree	Gain skills/insights for raising an individual with disabilities &/or complex healthcare needs Agree	Gain skills/insights for raising an individual with disabilities &/or complex healthcare needs Not sure	Gain skills/insights for raising an individual with disabilities &/or complex healthcare needs Disagree	Gain skills/insights for raising an individual with disabilities &/or complex healthcare needs Strongly Disagree
Become aware of the resources and supports available to me and my family	Become aware of the resources and supports available to me and my family Strongly Agree	Become aware of the resources and supports available to me and my family Agree	Become aware of the resources and supports available to me and my family Not sure	Become aware of the resources and supports available to me and my family Disagree	Become aware of the resources and supports available to me and my family Strongly Disagree

Other (please specify)

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* 5. What types of support are you interested in? (Check all that apply)

One-to-one support

Support group for parents/guardians

Support group for siblings (i.e. Sibshops)

I am interested in helping other parents who are on a similar journey

I am not interested in support, I prefer informational events

I am not interested in support, I prefer social/recreational events

Other (please specify)

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* 6. What types of information are you interested in? (Check all that apply)

Diagnosis-specific information

SPECIAL EDUCATION Related TOPICS: Understanding IFSPs, IEPs, 504s, Rights & Responsibilities, Free and Appropriate Education (FAPE), etc.

Effective COMMUNICATION with my child's school/medical team(s)

NAVIGATION SYSTEMS: Schools, community, government agencies/programs, medical, etc.

Future Planning: Legal, housing, finances, community supports, etc.

Other (please specify)

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* 7. What types of advocacy information are you interested in? (Check all that apply)

How to advocate for my child's needs in the school/medical/community setting

I am interested in attending a legislative training to understand how my voice can influence policy

I am interested in attending advocacy day(s) in Olympia with a group of parents

Leadership training to become an advocate for other parents

I don't know what this all means, but I am interested in learning more about advocacy

Other (please specify)

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* 8. What types of social/recreational events are you interested in? (Check all that apply)

Mom's/Dad's Nights Out

Park Play Dates

Family Picnic/BBQ

Family Bowling

Family Swim Social

Family Game or Movie Night

Private Party Events @ Children's Museum, Jungle Playland, gymnastics venue, etc.

Other (please specify)

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* 9. When is the best time for you to attend our events?

	Weekday: Mornings	Weekday: Afternoons	Weekday: Evenings	Saturday: Mornings	Saturday: Afternoons	Saturday: Evenings
I prefer to attend support groups	I prefer to attend support groups Weekday: Mornings	I prefer to attend support groups Weekday: Afternoons	I prefer to attend support groups Weekday: Evenings	I prefer to attend support groups Saturday: Mornings	I prefer to attend support groups Saturday: Afternoons	I prefer to attend support groups Saturday: Evenings
I prefer to attend informational workshops	I prefer to attend informational workshops Weekday: Mornings	I prefer to attend informational workshops Weekday: Afternoons	I prefer to attend informational workshops Weekday: Evenings	I prefer to attend informational workshops Saturday: Mornings	I prefer to attend informational workshops Saturday: Afternoons	I prefer to attend informational workshops Saturday: Evenings
I prefer to attend social/recreational events	I prefer to attend social/recreational events Weekday: Mornings	I prefer to attend social/recreational events Weekday: Afternoons	I prefer to attend social/recreational events Weekday: Evenings	I prefer to attend social/recreational events Saturday: Mornings	I prefer to attend social/recreational events Saturday: Afternoons	I prefer to attend social/recreational events Saturday: Evenings
I prefer to attend advocacy events	I prefer to attend advocacy events Weekday: Mornings	I prefer to attend advocacy events Weekday: Afternoons	I prefer to attend advocacy events Weekday: Evenings	I prefer to attend advocacy events Saturday: Mornings	I prefer to attend advocacy events Saturday: Afternoons	I prefer to attend advocacy events Saturday: Evenings

Question Title

* 1. Tell us about your child(ren) with varying needs and YOU.

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* 2. How do you gain information on disabilities and related issues? (Please rank first to last)

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* 3. Why do you participate in disability related activities/events? (Check all that apply)

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* 4. Special needs parent events give me the opportunity to... (Check all that apply)

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* 5. What types of support are you interested in? (Check all that apply)

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* 6. What types of information are you interested in? (Check all that apply)

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* 7. What types of advocacy information are you interested in? (Check all that apply)

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* 8. What types of social/recreational events are you interested in? (Check all that apply)

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* 9. When is the best time for you to attend our events?

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* 10. Do you have any other ideas to expand or enhance our parent support activities?