Survey about the Experiences and Needs of the Polish HD Community

Introduction

Dear Participant,
This online survey is aimed at people residing in Poland who are directly or indirectly connected to Huntington's Disease (HD).

The information you provide will be used by the Polish Huntington Association and the European Huntington Association to inform and develop actions tailored to the HD community in Poland.

The survey is completely anonymous (no personal information is collected, such as name, IP, or e-mail address), easy to fill and brief – it will take about 10 minutes to complete.

If you are completing this survey on behalf of a person with Huntington’s disease who is unable to respond independently, please indicate the answers that best reflect their preferences.

If you do not wish to disclose information on any of the topics included in this survey, please select the “Prefer not to say” response.

If any question does not apply to your situation in relation to HD (for example, if you are a professional), please select the ‘Not Applicable’ response.

Any information you can share with us is crucial to guide the planning of our work in Poland and make it much more meaningful, so thank you for your contribution!

The results of the survey will be shared with the community later in 2026.

To learn more about the Polish Huntington Association, visit http://huntington.pl/
To learn more about the European Huntington Association, visit www.eurohuntington.org
1.Clicking on the "Agree" button below indicates that:

- You voluntarily agree to participate

- You confirm that you have not filled in this survey previously

- You agree that your responses can be used as aggregated anonymous data by the Polish Huntington Association and the European Huntington Association for the purpose of understanding the experiences and needs of the families impacted by HD in Poland and trying to provide appropriate answers.
(Required.)