EXIT

National PHN Mental Health Lived Experience Engagement Network
(MHLEEN)
2020 Stocktake Survey -
Consumer/Carer Engagement and Peer Workforce Development

In June/July 2018, the Brisbane North PHN was invited by the Department of Health to chair and provide secretariat support to a newly established network to assist in improving and embedding 'lived experience' engagement within the PHN’s and their commissioning cycles.

The National PHN Mental Health Lived Experience Network (MHLEEN) met for the first time in June 2018 and meets monthly. In October 2018, MHLEEN undertook a Stocktake of PHN's engagement activities and had a 90% response rate from the 31 PHN's. In 2019, the Department continued to commit to this work by funding the network for an additional three years. During 2019 the Department also released guidance materials for the Peer Workforce.

MHLEEN's 3 core objectives are aligned to the National Guidance Materials. These objectives include:

1. PHN's to embed consumer and carer engagement in the co-design throughout the commissioning cycle.

2. PHN's to support better outcomes in mental health by promoting and supporting the employment of peer workers as part of multi-disciplinary teams providing person centred support and recovery-oriented and trauma informed care and

3. Maintain a national Network and links with other key stakeholders to support, coordinate and collaborate on continuous improvements in line with the maxim 'nothing about us without us'

(The preferred language is people/person with a lived experience with mental health issues and/or suicide (PLE). They may be either as a consumer or a carer.

Questions asked in the original 2018 survey included areas such as:

·       Number of Mental Health Program Employees including identified Lived Experience positions

·       Governance structures, representative roles and other roles involving people with a lived experience

·       Support and/or training provided to PLE involved with the PHN and/or commissioned services

·       What policies and procedures exist around Lived Experience Engagement

·       What engagement frameworks are used

·       Types of engagement activities around informing, consulting, involving, collaborating and empowering

·       Engagement requirements within the tendering and reporting cycles

·       Lived experience workforce within commissioned services

·       Collaborative engagement activities with other stakeholders and

·       What outcomes PHN’s would like to see from MHLEEN

For benchmarking purposes the same questions will be asked in 2020. A Working Group of MHLEEN reviewed the original questions and there are some additional questions included.

If you wish to upload any relevant/supporting files please see question 28 of this survey.

If you would like to discuss any aspects of the survey please contact:

Paula Arro - Consumer/Carer Participation Coordination

MHAOD - Brisbane North PHN

(07) 3490 3437

paula.arro@brisbanenorthphn.org.au

This survey will talk approximately 10 minutes to complete

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* 1. Name of PHN

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* 2. Name of contact person

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* 3. Position within PHN

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* 4. Contact phone number

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* 5. Contact email address

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* 6. Number of Mental Health program employees

Full-time (all)

Full-time (Lived Experience identified positions)

Part-time (all)

Part-time (Lived Experience identified positions)

Casual (all)

Casual (Lived Experience identified positions)

Lived Experience Representatives (paid a sitting fee/honorarium)

Lived Experience Consultants/Practitioners

Volunteers

On mailing list/register to contact

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* 7. Does your PHN have governance and management structures that include People with a lived experience as partners?

Yes

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* 8. If yes what type of committees/representative roles do you have that have lived experience representation? (tick as many as appropriate).

Community Advisory Committee (Broad PHN)

Mental Health Specific Advisory Committee

Child and Young People

Severe and Complex Mental Illness

Aboriginal and Torres Strait Islander

Low Intensity/Brief Interventions

Psychological Therapies

Suicide Prevention

Alcohol and other Drugs

Other (please specify)

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* 9. What other types of roles do you have for people with a lived experience?

Recruitment panels for new PHN staff

Recruitment panels for new C&C representatives

Tender assessment panels

Lived experience researchers/evaluators

Lived experience speakers, educators, trainers

Auditors/Reviewers

Peer Workers

Other (please specify)

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* 10. Do you provide additional support and/or training to people with a lived experience that are participating with your PHN

Yes

If Yes please describe ...

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* 11. Please identify any of the following policies and/or procedures you have in relation to lived experience engagement within your PHN

Terms of Reference for committees/project groups

Role Descriptions for Lived Experience, Consumer and/or Carer roles

Consumer & Carer Representative Policies, Procedures

Sitting Fees/Reimbursement/honorarium and out of pocket expenses for C&C representatives

Induction and/or training for people with lived experience

Induction and/or training for PHN staff around engagement with People with a Lived Experience

Expression of Interest templates and/or other promotional/recruitment materials

Correspondence to Consumers, Carers involved with PHN

Engagement templates or tools your PHN uses to map activities

Quality review activities, supports and strategies (eg., feedback loops from people with lived experience)

registers/mailing lists of people with lived experience wanting to participate

briefing/debriefing, supervision and support strategies

Other (please specify)

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* 12. Does your PHN use a specific engagement framework and/or model (eg., IAP2 Spectrum, Health Consumers Peaks ...)

Yes

If yes please provide details

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* 13. The following questions are shaped around the International Association of Public Participation (IAP2) Spectrum (see ... https://www.iap2.org/default.aspx). The spectrum a ladder of participation:
Informing
Consulting
Involving
Collaborating and
Empowering.

Are you familiar with the IAP2 Spectrum

Yes

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* 14. Informing - is where you provide people with a lived experience with balanced and objective information to assist them in understanding the problems, alternatives, opportunities and/or solutions.

The aim is "we will keep you informed"

What strategies does your PHN use to 'inform' people with a lived experience

PHN mailing list of people with a lived experience

PHN mailing list of service providers

PHN mailing list to commissioned services

flyers/pamphlets distributed in community settings

through peak bodies and/or advocacy groups

PHN social media

other social media

PHN website

other websites

Expression of Interest through recruitment services

Other (please specify)

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* 15. 'Consulting' is where you are obtaining feedback on analysis, alternatives and/or decisions.

The aim is that 'we will keep you informed, listen to and acknowledge concerns and provide feedback on how public input influenced the decision'.

What strategies does your PHN use to 'consult' with people with a lived experience?

focus groups

community forums

online questionnaires/surveys

e-newletters

link in with existing groups/networks to discuss topic

email list

social media

functions, conferences and/or events

asking questions during C&C accessing service providers

Other (please specify)

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* 16. Involving" is where you work directly with people with a lived experience throughout the process to ensure concerns and aspirations are consistently understood and considered.

The aim is 'we will work with you to ensure that your concerns and issues are directly reflected in the alternatives developed and provide feedback on how public input influenced the decision'

What strategies have you used to 'involve' people with a lived experience in the planning, implementation and evaluation of projects or programs?

Focus groups to develop concept/project

Project/Steering Group membership

Interview/recruitment/selection panels

Evaluation panels

Project updates at network and other C&C meetings

Report back and updates via mailing list

Other (please specify)

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* 17. "Collaborating" is when you partner with people with a lived experience in each aspect of the decision, including the development of alternatives and the identification of the preferred solution.

The aim is 'we will look to you for direct advice and innovation in formulating solutions and incorporate your advice and recommendations into the decisions to the masimum extent possible'

Please provide any examples of how you have collaborated with people with a lived experience.

Example 1

Example 2

Example 3

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* 18. "Empowering" is placing the final decision-making in the hands of people with a lived experience.

The aim is 'we will implement what you decide'.

Please provide any examples of how your PHN has 'empowered' people with a lived experience.

Example 1

Example 2

Example 3

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* 19. On a scale of 1 to 5 rank each participation level 5 being 'the most activity, 1 being the least activity you undertake

inform

consult

involve

collaborate

empower

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* 20. In your PHN's tendering processes do you have any selection criteria specifically related to engagement of people with a lived experience?

Yes

If yes please describe

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* 21. In your PHN's reporting requirements and KPI's with commissioned services do you have any specific lived experience engagement reporting requirements?

Yes

If yes please describe

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* 22. Do any of your commissioned services employ lived experience/peer workers?

Yes

Unsure/Don't know

If yes please describe

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* 23. Have you undertaken any collaborative lived experience engagement activities with other local, state, national and/or international stakeholders?

other PHN's

commissioned services

hospital and health services

Mental Health Commissions

other local/regional community services

other external committees/governance groups

researchers/universities and academics

for profit business, private organisations

peak bodies

Please provide any details

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* 24. What would be the 3 outcomes you would like to see from the Lived Experience Engagement Network over the next 12 months

1st priority

2nd priority

3rd priority

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* 25. Please provide a brief case study of a project, program or service in your region where you have engaged people with a lived experience in the design, development and evaluation of a project, program or service.

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* 26. Please provide a short case study of a project, program or service in your region that utilises people with a lived experience in the workforce.

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* 27. Please provide any feedback you have on the role of MHLEEN including the strengths, weaknesses, opportunities, threats.

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* 28. Please attach any relevant files here

PDF, DOC, DOCX, PNG, JPG, JPEG, GIF file types only.

Choose File

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* 1. Name of PHN

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* 2. Name of contact person

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* 3. Position within PHN

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* 4. Contact phone number

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* 5. Contact email address

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* 6. Number of Mental Health program employees

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* 7. Does your PHN have governance and management structures that include People with a lived experience as partners?

Question Title

* 8. If yes what type of committees/representative roles do you have that have lived experience representation? (tick as many as appropriate).

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* 9. What other types of roles do you have for people with a lived experience?

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* 10. Do you provide additional support and/or training to people with a lived experience that are participating with your PHN

Question Title

* 11. Please identify any of the following policies and/or procedures you have in relation to lived experience engagement within your PHN

Question Title

* 12. Does your PHN use a specific engagement framework and/or model (eg., IAP2 Spectrum, Health Consumers Peaks ...)

Question Title

* 13. The following questions are shaped around the International Association of Public Participation (IAP2) Spectrum (see ... https://www.iap2.org/default.aspx). The spectrum a ladder of participation:InformingConsultingInvolvingCollaborating andEmpowering.Are you familiar with the IAP2 Spectrum

Question Title

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Question Title

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* 18. "Empowering" is placing the final decision-making in the hands of people with a lived experience.The aim is 'we will implement what you decide'.Please provide any examples of how your PHN has 'empowered' people with a lived experience.

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* 19. On a scale of 1 to 5 rank each participation level 5 being 'the most activity, 1 being the least activity you undertake

Question Title

* 20. In your PHN's tendering processes do you have any selection criteria specifically related to engagement of people with a lived experience?

Question Title

* 21. In your PHN's reporting requirements and KPI's with commissioned services do you have any specific lived experience engagement reporting requirements?

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* 22. Do any of your commissioned services employ lived experience/peer workers?

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* 23. Have you undertaken any collaborative lived experience engagement activities with other local, state, national and/or international stakeholders?

Question Title

* 24. What would be the 3 outcomes you would like to see from the Lived Experience Engagement Network over the next 12 months

Question Title

* 25. Please provide a brief case study of a project, program or service in your region where you have engaged people with a lived experience in the design, development and evaluation of a project, program or service.

Question Title

* 26. Please provide a short case study of a project, program or service in your region that utilises people with a lived experience in the workforce.

Question Title

* 27. Please provide any feedback you have on the role of MHLEEN including the strengths, weaknesses, opportunities, threats.

Question Title

* 28. Please attach any relevant files here

* 18. "Empowering" is placing the final decision-making in the hands of people with a lived experience.

The aim is 'we will implement what you decide'.

Please provide any examples of how your PHN has 'empowered' people with a lived experience.