2022 Annual Patient Meeting Preferences Survey

Help ASF Plan Our 2022 Event

It may feel like Alport Connect 2021 just wrapped up, but next year’s meeting will be here before we know it! As this unique event is our main opportunity to come together for the year, we would like to learn your preferences concerning next year’s meeting format.

If ASF were to hold an in-person gathering next summer, it would likely be held in the Midwestern United States but this is potentially subject to change.

Question Title

* 1. For the next Alport Connect meeting tentatively to be held in August 2022, which type of experience would you most likely be able to attend? Please select all that apply.

All Virtual, with a similar format to the August 2021 meeting

All Virtual, but with some changes to the format from last year (please explain below)

Virtual/in person hybrid, where those who would like to attend in person can do so, and others can attend virtually to watch a livestream of the keynote presentation(s)

I’d prefer to simply watch recorded keynote presentations after the meeting, on my own time

If you chose "All Virtual, but with some changes..." please explain your choice:

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* 2. If the keynote presentations are offered via livestream, do you still see value in an in-person event? Please explain your answer in the accompanying comment box.

Yes

Explain your choice:

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* 3. Would you want to attend in person if “full COVID-19-Vaccination” (as defined by the CDC by the time of the event, potentially including a booster shot) is required for entry?

Yes

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* 4. Would you be willing to bring your children ages 5+ if they were required to show proof of full COVID-19 vaccination?

Yes

Not applicable

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* 5. Would it impact your decision to attend in person if ASF did not offer teen or pre-teen programming?

Yes

This is not applicable for me/my family

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* 6. Would you want to attend in person if masks are required for safety/venue policy reasons?

Yes

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* 7. Would hearing- or communication-based considerations factor into your decision to attend in person?

Yes

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* 8. Would a potential mask mandate interfere with your ability to communicate effectively with fellow in-person attendees?

Yes

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* 9. What is your general comfort level with traveling by car during the COVID-19 pandemic?

I have no concerns

I am somewhat concerned

I am not comfortable

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* 10. What is your general comfort level with traveling by public transportation while COVID-19 is still causing infections and hospitalizations?

I have no concerns

I am somewhat concerned

I am not comfortable

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* 11. What is your general comfort level with traveling by plane while COVID-19 is still causing infections and hospitalizations?

I have no concerns

I am somewhat concerned

I am not comfortable

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* 12. What is your general comfort level with staying in a hotel or other lodging provider near/at the potential event space during the COVID-19 pandemic?

I have no concerns

I am somewhat concerned

I am not comfortable

Question Title

* 13. Would you be willing to travel to the meeting if stipends are not available to attendees next year?

Yes

It would require further consideration

2022 Annual Patient Meeting Preferences Survey

Help ASF Plan Our 2022 Event

Question Title

* 1. For the next Alport Connect meeting tentatively to be held in August 2022, which type of experience would you most likely be able to attend? Please select all that apply.

Question Title

* 2. If the keynote presentations are offered via livestream, do you still see value in an in-person event? Please explain your answer in the accompanying comment box.

Question Title

* 3. Would you want to attend in person if “full COVID-19-Vaccination” (as defined by the CDC by the time of the event, potentially including a booster shot) is required for entry?

Question Title

* 4. Would you be willing to bring your children ages 5+ if they were required to show proof of full COVID-19 vaccination?

Question Title

* 5. Would it impact your decision to attend in person if ASF did not offer teen or pre-teen programming?

Question Title

* 6. Would you want to attend in person if masks are required for safety/venue policy reasons?

Question Title

* 7. Would hearing- or communication-based considerations factor into your decision to attend in person?

Question Title

* 8. Would a potential mask mandate interfere with your ability to communicate effectively with fellow in-person attendees?

Question Title

* 9. What is your general comfort level with traveling by car during the COVID-19 pandemic?

Question Title

* 10. What is your general comfort level with traveling by public transportation while COVID-19 is still causing infections and hospitalizations?

Question Title

* 11. What is your general comfort level with traveling by plane while COVID-19 is still causing infections and hospitalizations?

Question Title

* 12. What is your general comfort level with staying in a hotel or other lodging provider near/at the potential event space during the COVID-19 pandemic?

Question Title

* 13. Would you be willing to travel to the meeting if stipends are not available to attendees next year?

Question Title

* 14. Is there anything else you would like us to know when deciding the format for the 2022 Alport Connect meeting?