Please only answer the following survey if:
-you are a parent or a guardian of a person with Prader-Willi syndrome
-your child is in school or has been in school

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* 1. Contact Information: (If you would like to take this survey anonymously please write "anonymous" in the name and email box)

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* 2. How old is your child with PWS?

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* 3. My child with Prader-Willi syndrome is (was) in a:

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* 4. Does (did) your child have an Individualized Education Program (IEP)?

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* 5. Does (did) your child have a 504 plan?

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* 6. Has your child ever been suspended?

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* 7. If yes, how many times?

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* 8. Has your child ever been expelled?

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* 9. If yes, how many times?

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* 10. Has your child ever had a change of school placement?

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* 11. What percentage of your child's day is (was) spent in a special education setting?

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* 12. Overall, how satisfied are you (were you) with your child's school experience?

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* 13. Did your child graduate high school?

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* 14. How old was your child when they completed high school?

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* 15. Overall, how satisfied were you with the transition services provided for your child?

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* 16. Overall, are you (were you) satisfied with your child's academic progress?

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* 17. Has your child ever had an Functional Behavior Assessment (FBA)?

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* 18. Has your child had a written behavior plan?

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* 19. Have you ever: (select all that apply)

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* 20. Have you ever: (select all that apply)

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* 21. Have you ever: (select all that apply)

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* 22. How satisfied are you (were you) with your child's Individualized Education Plan (IEP) team?

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* 23. How satisfied are you (were you) with your child's Individualized Education Plan (IEP) ?

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* 24. Has your child's IEP team ever discussed: (select all that apply)

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* 25. Have you ever requested the school district pay for an Independent Educational Evaluation (IEE)?

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* 26. Does your child have paraprofessional assistance throughout the school day?

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* 27. How satisfied are you with the level of food security at your child’s school?

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* 28. Has your child ever run away from school?

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* 29. Has law enforcement or a school resource officer ever been involved with your child at school?

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* 30. How satisfied are you with your child’s academic progress at school?

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* 31. Do you feel hopeful about your child’s educational future?

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* 32. Did your child attend college or vocational school after graduation?

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* 33. Would you be interested in attending a FREE online special education advocacy training offered by PWSA (USA) for parents/guardians?

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* 34. Please explain, what strategy or support has been most effective for your child during their education?

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* 35. If you could wave a magic wand and whatever you wanted for your child's schooling would come true without regard to money, time or the school district's opinion, what would you want for your child?

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