1. You need only respond to this survey if your child has passed away.

* 1. Please can you provide your child's details:

* 2. Did you see a deterioration in your child's condition prior to their passing?

* 3. Do you know the cause of your child's death? (please tick all that apply and the order in which they happened if you can)

  Initially Followed by Ultimately Not Applicable
Uncontrolled Seizures
Stomach failure (total intolerance to feed)
Heart Attack
Other (give details in Q5)

* 4. How long was your child continuously unwell before passing?

* 5. Please give further information on your child's passing if you wish to: