WSO Post Stroke Spasticity Survey

Completing the survey
The World Stroke Organization has received funding from IPSEN to conduct a survey about knowledge of post-stroke spasticity and experience of treatment.
The findings of this survey will be shared with IPSEN. Both IPSEN and the World Stroke Organization will use the findings to inform our activities.
Taking part in this survey is voluntary and anonymous. Please do not put your name or address on the survey.
Purpose
· To find out about what survivors of stroke and carers know about post-stroke spasticity and where they learned about it.
· To better understand the availability of and access to post-stroke spasticity treatment.
1.Demographics:

In which country do you live?(Required.)
2.What is your age?(Required.)
3.What is your gender?(Required.)
4.I am(Required.)
5.When did you, your friend or family member experience a stroke? (the most recent if more than one stroke has been experienced)(Required.)
6.What was your (if you experienced a stroke) or your friend’s/family member’s employment/education status before and after the stroke?(Required.)
Before stroke
After stroke
In full time education (school, college, or university)
Employed
Self Employed
Unpaid care or looking after children or relatives
Unable to work, including medically retired
Retired
Volunteer
7.Post-stroke spasticity knowledge:

At the time of your or your friend’s/family member’s stroke, how much do you agree with the following statements?(Required.)
Strongly agree
Agree
Neither agree nor disagree
Disagree
Strongly disagree
Not sure
I knew that spasticity is an effect of stroke
I knew how stroke can cause spasticity
I knew that spasticity can cause muscles to contract
I knew that spasticity can cause muscles to spasm
I knew how spasticity could be treated
8.Since the time of your or your friend’s/family member’s stroke how has your knowledge changed?(Required.)
Increased
Decreased
Stayed the same
I know that spasticity is an effect of stroke
I know how stroke can cause spasticity
I know that spasticity can cause muscles to contract
I know that spasticity can cause muscles to spasm
I know how spasticity can be treated
9.At the time of your or your friend’s/family member’s stroke where did you find information about post-stroke spasticity?(Required.)
10.In the weeks and months since your or your friend’s/family member’s stroke have you found other sources of information in addition to those listed above? (Please give details)(Required.)
11.What specific information or resources would you find helpful in better understanding and managing spasticity? (Please give details)
12.Post-stroke spasticity treatment:

Please state how much you agree with the following statements:(Required.)
Strongly agree
Agree
Neither agree nor disagree
Disagree
Strongly disagree
Not sure
Treatment could not be accessed because of a lack of information about where to go
Treatment could not be accessed because no transport was available
Treatment could not be accessed because of a lack of money to pay for it
Treatment could not be accessed because services were not available near by
13.What spasticity therapy/treatment/support was available and did it help you or your friend/family member?(Required.)
Yes, and this helped
Yes, but it did not help me
No, but I would have liked this
No, because I had no need for this
No, because I declined this
Not sure
Physiotherapy
Botulinum toxin type A
Medication
Splinting and casting
Contact with a support organisation or group
14.Post-stroke spasticity: friends, family and community response.

How much do you agree with the following statements?(Required.)
Strongly agree
Agree
Neither agree nor disagree
Disagree
Strongly disagree
Not sure
There is a lack of understanding about the cause of spasticity among my friends and family
There is a lack of understanding about the cause of spasticity from employers and in the workplace
People with spasticity experience discrimination from employers and in the workplace
There is a lack of understanding about the cause of spasticity in the general population
People with spasticity experience discrimination from the general population
15.Is there anything else you would like to tell us about your or your friend's/family member's experience