1.Thinking back, when did you first realise that your relative was becoming seriously unwell or approaching the end of their life? Did you feel that was early enough to discuss their care and support?

2.Did your relative have the opportunity to talk about what mattered to them?

3.Were your relative's wishes recorded and shared with the people who needed to know? (Advanced care plan, preferred place of care)

4.When your relative became more unwell, did the care they received reflect their wishes?

5.If their wishes could not be followed, what stopped that from happening?

6.Can you tell us what happened? (E.g. did they receive the right support at home? Was the GP involved? Were community/district nurses involved? Was hospice support offered? Was palliative care involved? Did anyone anticipate what might happen next? Did the family know who to contact if things deteriorated?)

7.Can you remember an example of good practice that you witnessed during your relative's care?

8.Can you remember an example of where care could have been better?

9.If hospice care was wanted, how did that process happen?

10.Is there anything that could have made the transfer to hospice happen more smoothly?

11.How supported did you feel as a family?

Very supported

Supported

Neither supported or unsupported

Unsupported

Very unsupported

N/A

12.What made you feel that way?

13.What do you think prevents people at the end of life from receiving care in the right place, at the right time, in the way they would have wanted?

14.What do you feel needs to change?