Transition

Transition - Moving from pediatric to adult CHD care

Canadian Congenital Heart Alliance has created a survey with the purpose of gathering feedback from teens, young adults and adults living with CHD, and their families about their experiences with Transition. We are looking for input from those currently in the process of Transition, those that are now in adult CHD care or those that have children that will be transitioning in the future.

This information will be used to create educational resources and materials as well as provide support for families transitioning to adult care. You can choose to keep your responses anonymous or provide your contact info so we can include in educational materials and resources and share on social media.

We thank you for your time and feedback.

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* 1. Are you

Adult living with CHD

Teen living with CHD

Parent of an adult with CHD

Parent of a child/teen with CHD

Family member of someone with CHD

Healthcare practitioner working with CHD patients

Other (please specify)

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* 2. How old are you

Under 18 (under 15)

Under 18 (15-18)

18-24

25-34

35-44

45-54

55-64

65+

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* 3. What province did you receive your pediatric CHD care (if more than one pick the last province you received pediatric CHD care in)

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* 4. At what age do you think the Transition process should begin?

Less than 12 yo

13 yo

14 yo

15 yo

16 yo

17 yo

18 yo

19 yo

20 yo

>21 yo

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* 5. Did you/your child/your parents receive any information from your clinic/cardiologist/Nurse Practitioner/etc. about your transition to adult care?

Yes . (Please provide details)

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* 6. Was Transitioning to adult CHD care challenging?

No, it was no big deal

I was a little worried/ anxious

Yes, it was challenging

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* 7. What was the best advice you received about Transitioning to adult CHD care? What advice would you give to someone Transitioning to adult CHD care?

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* 8. What advice would you give to health professionals (i.e. pediatric CHD cardiologist, adult CHD cardiologists, nurses, counsellor, social worker) about Transitioning to adult CHD care?

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* 9. Any other comments about Transitioning to adult CHD care

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* 10. We may include some of your comments in our educational materials and social media. If you would like to include your name (first name) please provide your contact info, otherwise it will remain anonymous.

First Name

Email Address