Evaluation of E-Breakthrough and Breakthrough 2018

E-Breakthrough and Breakthrough evaluation survey

Dear EULAR liaison officers,

For the past 6 years the Standing Committee of PARE has regularly published our e-Breakthrough newsletter (3 issues per year) and one annual hard copy of Breakthrough. In addition a Special Congress issue is published annually after the EULAR Congress in June. The overall aims of the newsletter are:

• to inform key stakeholders within the EULAR community (Standing Committees, EULAR member organisations) and outside (EULAR Congress visitors, politicians) of the activities of the EULAR Standing Committee of PARE;
• to give a platform to other Standing Committees and EULAR member organisations to introduce their activities to a European audience;
• to be a more regular tool for communicating with the EULAR membership and other key stakeholders; and
• to keep national organisations informed and involved in the projects and developments on an ongoing basis.

In line with the new EULAR Strategy, the Standing Committee of PARE would now like to evaluate the impact and usefulness of the newsletter and would be grateful if you and your organisation would spare a moment to complete the following questionnaire. Please only fill in the questionnaire once on behalf of your organisation.

Thank you so much for your support in advance!

Question Title

* 1. Your name and organisation

Your organisation

Your name

Question Title

* 2. Currently EULAR is producing 4 issues of e-Breakthrough/Breakthrough a year. Is this number of issues sufficient to let your organisation feel regularly updated?

Yes it is fine

Could be more issues

Could be less issues

Comments

Question Title

* 3. Are you satisfied with the overall appearance and length of e-Breakthrough ?

Yes

If no, what should be different?

Question Title

* 4. Which topics are most relevant for your organisation? (tick all that apply)

EULAR PARE Annual Conference

EULAR Congress

Reports from other EULAR Standing Committees

World Arthritis Day

Knowledge Transfer Programme

Youth activities

EULAR Campaign

News from Brussels and EU activities

Patients Research Partners

Sharing best practice by national organisations

What additional topics would you find interesting that are not yet covered by e-Breakthrough/ Breakthrough?

Question Title

* 5. Is the information timely and relevant to you and/or your organisation?

Yes

If no, what would make it more relevant and timely to you?

Question Title

* 6. Generally do you read the whole issue?

Yes, I read the whole issue

No, I read only the articles that I find interesting

Comments

Question Title

* 7. Does your organisation share the information from e-Breakthrough?

Yes

If yes please let us know how e.g. website, magazine, social media:

Question Title

* 8. If you have shared e-Breakthrough or parts of it with other key stakeholders whom did you send it to? (tick all that apply)

Politicians

Academics

Clinicians

Health professionals

Government ministers or officials

Journalists

Pharmaceutical representatives

Other (please specify)

Question Title

* 9. Has your organisation translated any of the e-Breakthrough articles into your language?

Yes

If yes, how many articles have you translated within the last 18 months?

Question Title

* 10. Has your organisation contributed any news of your activities to e-Breakthrough?

Yes

If no please let us know why:

Question Title

* 11. Do you have plans to contribute an article to e-Breakthrough in the future?

Yes

If so, when and on what topic?

Question Title

* 12. Do you have any recommendations for the improvement of e-Breakthrough?

Question Title

* 13. In addition to e-Breakthrough the EULAR Standing Committee of PARE currently issues one hard copy of "Breakthrough" in time to distribute at the EULAR congress. Hard copies are also shared with the EULAR member organisations. How useful is this hard copy for your national organisation? Please let us know if you agree or disagree with the statements below.

	1 (very much agree)	2 (agree)	3 (do not care)	4 (do not agree)	5 (do not agree at all)
Important to share hard copy with other delegates at EULAR congress	Important to share hard copy with other delegates at EULAR congress 1 (very much agree)	Important to share hard copy with other delegates at EULAR congress 2 (agree)	Important to share hard copy with other delegates at EULAR congress 3 (do not care)	Important to share hard copy with other delegates at EULAR congress 4 (do not agree)	Important to share hard copy with other delegates at EULAR congress 5 (do not agree at all)
Hard copy is important for us at national level and is shared with key stakeholders	Hard copy is important for us at national level and is shared with key stakeholders 1 (very much agree)	Hard copy is important for us at national level and is shared with key stakeholders 2 (agree)	Hard copy is important for us at national level and is shared with key stakeholders 3 (do not care)	Hard copy is important for us at national level and is shared with key stakeholders 4 (do not agree)	Hard copy is important for us at national level and is shared with key stakeholders 5 (do not agree at all)
It would be better to replace hard copy by e-newsletter	It would be better to replace hard copy by e-newsletter 1 (very much agree)	It would be better to replace hard copy by e-newsletter 2 (agree)	It would be better to replace hard copy by e-newsletter 3 (do not care)	It would be better to replace hard copy by e-newsletter 4 (do not agree)	It would be better to replace hard copy by e-newsletter 5 (do not agree at all)

Please add specific comments

Question Title

* 1. Your name and organisation

Question Title

* 2. Currently EULAR is producing 4 issues of e-Breakthrough/Breakthrough a year. Is this number of issues sufficient to let your organisation feel regularly updated?

Question Title

* 3. Are you satisfied with the overall appearance and length of e-Breakthrough ?

Question Title

* 4. Which topics are most relevant for your organisation? (tick all that apply)

Question Title

* 5. Is the information timely and relevant to you and/or your organisation?

Question Title

* 6. Generally do you read the whole issue?

Question Title

* 7. Does your organisation share the information from e-Breakthrough?

Question Title

* 8. If you have shared e-Breakthrough or parts of it with other key stakeholders whom did you send it to? (tick all that apply)

Question Title

* 9. Has your organisation translated any of the e-Breakthrough articles into your language?

Question Title

* 10. Has your organisation contributed any news of your activities to e-Breakthrough?

Question Title

* 11. Do you have plans to contribute an article to e-Breakthrough in the future?

Question Title

* 12. Do you have any recommendations for the improvement of e-Breakthrough?

Question Title

Question Title

* 14. Any other comments on Breakthrough and e-Breakthrough?