Event for young people with PoTS and their families

We are delighted to announce that Historic Royal Palaces has kindly offered PoTS UK an amazing free day out at Hampton Court Palace for young people living with PoTS and their families.

This would be an opportunity to meet others who are facing the same challenges and build a community with people who understand.

The format of the day is to be confirmed but there would be age appropriate activities put on for the young people to enjoy and an opportunity for parents to be together and chat.

Alongside this, there would be time to explore the beautiful Palace and Gardens.

Before we commit to a date, we need to determine level of interest and kindly ask for you to complete the questions below so we can start to plan how the day will look.

This is a wonderful opportunity for us to get together and we hope to see lots of young people and their families there.

IMPORTANT:
This event is for children/young people living with PoTS under the age of 18 ONLY plus their families.
This is a free event but you would be responsible for getting to/home from the event. Travel expenses are not covered.
Drinks and ice creams will be provided but a packed lunch will be required.
The activities available will depend on the age of the children/young people attending.
Once we have a definite date and an idea of numbers, we will contact you again.
Whilst there are no definite plans, we would envisage the day starting at 10.30am to allow time for people to travel that morning.
The event will be tailored to the needs of your child as much as possible and we would be in contact beforehand to discuss this further.
To learn more about Hampton Court Palace or plan your journey: https://www.hrp.org.uk/hampton-court-palace/

1.How old is your child with PoTS? Please note that this event is for children with PoTS under the age of 18 only.(Required.)
2.How many parents/carers would be accompanying the child above? This may be restricted to a maximum of two adults depending on numbers.(Required.)
3.Does anyone attending have any accessibility requirements or accommodations that we need to be aware of to help you fully participate in the event?(Required.)
4.How many siblings would be joining this event. Not including the child in question 1.(Required.)
5.I understand that the day out does not include travel expenses and it is my responsibility to arrange travel to and from the event.
The postcode for Hampton Court Palace is KT8 9AU. Please do check it is feasible that you would be able to make this journey.
(Required.)
6.I could attend an event at Hampton Court Palace on the following dates. This will allow us to determine which date is most popular. Please select all of the dates that you can do. We do not yet have confirmation of a date so this is subject to change. At this stage we are gathering interest/availability.(Required.)
7.I am happy for PoTS UK to contact me about this event in the future. Please leave your email address below.(Required.)
8.Any other comments/questions?
Thank you for taking the time to complete this survey.

Data Privacy Statement
What we do with the information that we gather from survey responses.
In obtaining your cooperation to participate in the survey, we undertake not to mislead you in any way about the nature of the research we are conducting, the way in which the data is collected and the use that will be made of the survey results.
All of the information that you provide will be treated as confidential. Your comments will not be identified as belonging to you, instead they will be combined with those gathered from other survey participants, and will be analysed as part of a group. We do not use any of the information you provide for direct marketing or other non-research activities, but may use anonymous quotes on social media, in grant applications or for other purposes in line with the aims of the charity as described in our constitution. We may also share anonymously with other related charities.
If we ask you for personal information that enables you to be identified - e.g. your name and e-mail address we will clearly state why we are asking for it and for your permission to use it for that purpose. For example, it might be to inform you of future surveys, to see if you would be happy to share your story or to inform you of future events.
Your participation is voluntary. You are entitled to ask that part, or all, of the record of your involvement in the survey be deleted or destroyed. Please contact enquiries@potsuk.org if this is the case or you have any questions regarding our data privacy.