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Low on iron? Take part in our survey for everyone with a bleeding disorder
This survey aims to understand your experience of iron deficiency and/or iron deficiency anaemia as a person affected by a bleeding disorder, as well as the care and treatment you have received.
You are welcome to fill out the survey based on both your past and/or current experiences. However, we ask that you respond to questions on treatment and care based on your experiences within the last five years. This is because we are aiming to understand the monitoring and care currently provided by healthcare services. These questions will be indicated below with 'based on the last five years...'.
Note: Iron deficiency and iron deficiency anaemia are different. You can have iron deficiency without having anaemia.
Anaemia
is when the number of red blood cells, or the haemoglobin (a protein that transports oxygen in the blood) concentration in them, is lower than normal. This decreases the ability of the blood to carry oxygen to the body. A common cause of anaemia is iron deficiency.
Iron deficiency
is where your iron, which is essential for producing haemoglobin, is low. Your ferritin levels can show how much iron your body has.
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Are you answering this survey on behalf of yourself or as a parent/carer?
(Required.)
I am answering on behalf of myself
I am answering on behalf of my child
I am answering on behalf of the person I care for
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What bleeding disorder are you affected by?
(Required.)
Von Willebrand disorder type 1
Von Willebrand disorder type 2
Von Willebrand disorder type 3
Acquired von Willebrand disorder
Haemophilia A
Haemophilia B
Acquired haemophilia
Fibrinogen (factor I) deficiency
Prothombin (factor II) deficiency
Factor V deficiency
Factor V and factor VIII combined deficiency
Factor VII deficiency
Factor X deficiency
Factor XI deficiency (Haemophilia C)
Factor XIII deficiency
Combined vitamin K-dependent clotting factors deficiency (VKCFD)
Bernard-Soulier syndrome
Glanzmann thrombasthenia
Bleeding disorder of unknown cause (BDUC)
Other (please specify)
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What gender do you identify as?
(Required.)
Female (gender assigned at birth)
Transgender woman
Male (gender assigned at birth)
Transgender man
Non-binary
Prefer not to say
Other (please specify)
