NSGC Practice Guidance Committee (PGC) Topic Proposal Form: Practice Resources Survey

This form is intended to gather proposals from the NSGC membership for genetic counseling Practice Resource topics.

Definitions:

Clinical Practice Guidelines (CPG) offer evidence-based recommendations and supporting documentation that attempt to conform to Institute of Medicine standards. CPG consist of two (2) distinct author groups: a Systematic Evidence Review group and a Practice Guidelines group.
Practice Resources (PR) include a broad category of less evidence-driven documents relating to information-sharing and genetic counseling best practices that do not require evidence-based recommendations. A single author group completes a PR.

For more help distinguishing between CPGs and PRs, please see NSGC’s Practice Guideline Development Manual. If your topic is best suited for a CPG, please complete NSGC’s Clinical Practice Guidance Topic Proposal Form.

If you are unsure whether to submit a CPG or a PR proposal, please use the CPG Topic Proposal form. The Practice Guidance Committee (PGC) will contact you if it determines that your proposal would be better suited for a PR.

Process:

The PGC will review each proposed topic with respect to feasibility, priority, and quality, as well as the NSGC Strategic Plan.
The PGC will invite selected proposal submitters to work with the Committee to develop a formal proposal.
The PGC will send approved proposals to the NSGC Board for final approval. For each PR, the PGC will solicit applications for resource-specific author groups.

1.Proposed Title/Topic(Required.)

2.Proposed By (Names + Emails)(Required.)

3.Intent: Please describe the goal of the proposed Practice Resource, including the gap in clinical practice that the Practice Resource would address.

4.Scope: Please describe what issues in the topic area the Practice Resource would focus on as well as any related issues beyond the scope of this Practice Resource.

5.Target audience: Please describe the intended audience for this Practice Resource (e.g. all genetic counselors, a particular specialty genetic counselor, an experienced counselor, a new graduate, other healthcare professionals)

6.Benefits and Risk: Please describe the benefits and risks of moving forward with a Practice Resource on this topic. (e.g. a topic is evolving so quickly that it may be outdated within a short period of time, but would be worth pursuing because it may impact a large number of practicing genetic counselors who are requesting assistance ASAP.)

7.Potential Endorsement: In many cases, the endorsement of a practice resource from another organization can elevate the impact and/or visibility of the published document. Would you plan to seek an endorsement for this document from an external organization? If yes, from which organization(s)?

8.Please check all that apply to provide a rationale for this topic as a Practice Resource vs. a Clinical Practice Guideline:

There is insufficient evidence on this topic to perform a systematic evidence review.

This topic focuses on information sharing and genetic counseling best practices that do not require evidence or cannot, at this time, be based on evidence.

It is not possible to use evidence to assess the relative benefits and harms of the recommended interventions/tests/practices.

This topic is focused on broad genetic counseling practices and/or apply to many categories of patients.

The evidence is changing so rapidly that the current recommendations are likely to be outdated in 2-3 years.

This topic was proposed but not accepted as a Clinical Practice Guideline.

This topic is based on a pre-2015 retired NSGC Practice Guideline that is not amenable to the current NGC-compliant Clinical Practice Guideline requirements.

Other (please specify)

9.List Relevant References:

Current Progress,

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