Navigating Healthcare in the United States Navigating care is difficult; we are trying to do something about that. We want to learn about your experience. This survey takes about 2–3 minutes. Your responses are anonymous. You will help us change the system for good. TELL US ABOUT YOU Question Title * Are you completing this survey based on your experience navigating care for yourself or for someone in your care? (Required.) Myself Someone else Both myself and someone else Question Title * What is the age of the person whose care you are navigating? (Required.) 0-11 12-26 27-54 55-64 65-74 75-84 85+ Question Title * What is your relationship to the person whose care you are navigating? (Required.) Self Parent Child Spouse/Partner Sibling Friend Other family member Professional caregiver Other (please specify) TELL US ABOUT YOUR EXPERIENCE Question Title * In your own words, what is the most difficult thing you experience navigating healthcare? (Required.) For each of the following, how easy or difficult is your experience? 1 = extremely easy 5 = extremely difficult Question Title * Access to needed care where I live (Required.) 1 - EASY 2 3 4 5 - DIFFICULT 1 - EASY 2 3 4 5 - DIFFICULT Question Title * Knowing what kind of doctor, specialist, or other provider to see (Required.) 1 - EASY 2 3 4 5 - DIFFICULT 1 - EASY 2 3 4 5 - DIFFICULT Question Title * Access to appointments (Required.) 1 - EASY 2 3 4 5 - DIFFICULT 1 - EASY 2 3 4 5 - DIFFICULT Question Title * Managing the coordination between providers (Required.) 1 - EASY 2 3 4 5 - DIFFICULT 1 - EASY 2 3 4 5 - DIFFICULT Question Title * Getting clear information that I actually understand (Required.) 1 - EASY 2 3 4 5 - DIFFICULT 1 - EASY 2 3 4 5 - DIFFICULT Question Title * Feeling heard when talking with providers (Required.) 1 - EASY 2 3 4 5 - DIFFICULT 1 - EASY 2 3 4 5 - DIFFICULT Question Title * Keeping track of it all: records, tasks, appointments, people, questions (Required.) 1 - EASY 2 3 4 5 - DIFFICULT 1 - EASY 2 3 4 5 - DIFFICULT Question Title * Managing logistics: medications, treatment plans, getting to and from appointments (Required.) 1 - EASY 2 3 4 5 - DIFFICULT 1 - EASY 2 3 4 5 - DIFFICULT Question Title * Balancing care with work, school, family, etc. ("the rest of my life") (Required.) 1 - EASY 2 3 4 5 - DIFFICULT 1 - EASY 2 3 4 5 - DIFFICULT Question Title * Having enough time for all the care demands (Required.) 1 - EASY 2 3 4 5 - DIFFICULT 1 - EASY 2 3 4 5 - DIFFICULT Question Title * Managing the cost of care (Required.) 1 - EASY 2 3 4 5 - DIFFICULT 1 - EASY 2 3 4 5 - DIFFICULT Question Title * Navigating insurance (Required.) 1 - EASY 2 3 4 5 - DIFFICULT 1 - EASY 2 3 4 5 - DIFFICULT Question Title * Managing the emotional stress (Required.) 1 - EASY 2 3 4 5 - DIFFICULT 1 - EASY 2 3 4 5 - DIFFICULT Question Title * Which of these challenges feel the most overwhelming right now? select up to 3 (Required.) Keeping track of everything Finding emotional support Figuring out who to call or where to turn Managing the emotional wellbeing of the person in my care Coordinating care across multiple providers Talking to doctors and understanding what they're telling me Managing the cost of care Managing my own stress and wellbeing Navigating insurance Other (please specify) None of the above You are almost done. These last questions are the most important to us. We are building a platform to change the system: we want to know what support would make the biggest difference to you. TELL US WHAT WOULD HELP Question Title * What is one thing that would help you navigate care? (Required.) Question Title * What kind of support would be most helpful to you? Check all that apply (Required.) Assistance navigating insurance Access to a network vetted, trustworthy, resources Assistance finding financial support Peer support Support in coordinating between providers Help understanding the process Tools to organize and track everything in one place Help understanding what providers tell me Help preparing me for appointments and following up Someone to talk with who understands the burdens and toll of caregiving Other (please specify) ANY OTHER THOUGHTS: Question Title * Is there anything else you would like us to know? Question Title * Would you like to hear more about the Vigilant Advocate, participate in a follow-up conversation, or learn about our pilot programs? Yes No Next