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Dear Participant,

Thank you for taking the time to participate in our Lipoedema Survey. Your input is invaluable in helping us understand the challenges and experiences faced by individuals living with lipoedema.

This survey aims to gather comprehensive data on various aspects of your life, including out-of-pocket expenses, socioeconomic impact, use of compression hosiery, and access to care.

By sharing your experiences, you contribute to a greater understanding of the condition and help shape better support and treatment options for the lipoedema community.

The survey is designed to be thorough yet respectful of your time. It consists of 42 questions, mainly multiple choice, that cover key areas relevant to individuals living with lipoedema and should take 10-15 mins to complete.

Your responses are anonymous. They will be used for research purposes, to spread awareness of the challenges of living with lipoedema and to advocate for better healthcare policies.

We greatly appreciate your willingness to participate. Your feedback is crucial in highlighting the real-world impacts of lipoedema and ensuring that patients' voices are heard. Together, we can work towards a future where lipoedema is better understood, diagnosed, and treated.

Thank you once again for your valuable contribution.
Section 1:

Demographics and background information

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* 1. What is your age?

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* 2. What region ok UK to do you live in?

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* 3. If you were diagnosed with lipoedema by a clinician, GP or Lipoedema specialist, how long did it take to get that diagnosis?

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* 4. Have you been diagnosed with lymphoedema as well ?

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* 5. Do you need assistance to care for your lipoedema?

Section 2:

In this section we will ask about your out-of-pockets expenses related to your lipoedema. This section will ask about what items or treatments you have purchase to manage your condition.

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* 6. How much do you spend on average per month on medical treatments for lipoedema (including doctor's visits, travel to clinic, medications, skin care, Manual lymphatic drainage (MLD) etc.)?
Note: This does not include money for compression garments or non-cosmetic liposuction surgery.

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* 7. How much time do you spend a week managing your lipoedema?

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* 8. Have you ever had non-cosmetic liposuction surgery to manage your lipoedema?

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