Patient Education: Survey Questions for Parents

The International Pediatric Nephrology Association is a global, nonprofit organization committed to the care of children with kidney disease. IPNA facilitates the exchange of knowledge and expertise amongst medical personnel. IPNA also aims to provide up-to- date information about childrens’ kidney diseases and their treatments, to affected patients and their families.

The online IPNA HomePage now contains a tab “For Patients and Parents”, which takes you to :

http://www.ipna-online.org/patient-education

This site contains links to Childrens’ Kidney Disease related education materials which are categorised, and can be searched for by ‘Disease’, ‘Language’ or ‘Country of origin’. Information is available in more than 12 languages.

We aim for this to serve as a world-wide resource collection to provide knowledge and educational support to our patients and their families. We will be making every effort to upgrade and expand this resource regularly.

We request you to have a look at this website and give us feedback on the utility of the links provided. Subsequently please take a few minutes to answer the questions in the survey below. This will help us to make additions and modifications relevant to your requirements.