Hydrocephalus Surgery Experience Feedback Survey

Dear HA community,

From the HA WALKS to End Hydrocephalus on the East coast to HA CONNECT in California, we have met hundreds of amazing families. Your stories motivate us and drive us to design a better future for us all. In our quest to minimize the number of brain surgeries - #NOMOREBS - and secondary complications or discomforts of living with a shunt, please help us collect your experiences in this survey. Together we will create better solutions that have less impact on your daily lives.

Thank you all for your drive and participation,

Sincerely,
Longeviti Neuro Solutions

If you are a caregiver, please fill this information out for the person with hydrocephalus. For each question, 'you/your' refers to the person with hydrocephalus.

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* 1. What is your age? (in years, i.e. 24)

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* 2. What is your gender?

Male

Female

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* 3. How long ago was your first shunt implanted?

0-1 years

1-5 years

6-10 years

11-20 years

Over 20 years

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* 4. Have you ever had a revision surgery?

Yes

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* 5. If yes to question 4, how many?

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* 6. If yes to question 4, what were the reasons?

Infection

Shunt Migration, Dislodging, or
Disconnecting

Wound Breakdown or Extrusion (exposed through skin)

Scalp Pain/Discomfort

Occlusion (clogging)

Other

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* 7. Have you ever experienced pain or discomfort caused by your shunt hardware (i.e. valve, tubing, catheter)

Yes

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* 8. Where is your shunt placed?

Enters through the top of the head

Enters through the back of the head

Both (i.e. multiple shunts with different entry points)

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* 9. Do you avoid resting or sleeping on the side(s) of your head with the shunt?

Yes

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* 10. Do you fear bumping or dislodging your shunt?

Yes

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* 1. What is your age? (in years, i.e. 24)

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* 2. What is your gender?

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* 3. How long ago was your first shunt implanted?

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* 4. Have you ever had a revision surgery?

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* 5. If yes to question 4, how many?

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* 6. If yes to question 4, what were the reasons?

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* 7. Have you ever experienced pain or discomfort caused by your shunt hardware (i.e. valve, tubing, catheter)

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* 8. Where is your shunt placed?

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* 9. Do you avoid resting or sleeping on the side(s) of your head with the shunt?

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* 10. Do you fear bumping or dislodging your shunt?

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* 11. If yes to question 10, are there activities you do not partake in due to this fear? (e.g. playing sports, putting on helmets, etc.)