Directions

This survey is to be answered by or about a single individual who has been diagnosed or told they have FSH muscular dystrophy. (A parent, guardian, or caregiver can respond on behalf of an affected individual. Please answer the questions as if you are the patient.) Your responses are confidential. Responses are tied to a specific IP address. If you have other family members who also have FSHD, please feel free to forward them the email with the link to this survey.

Question Title

* 1. What outcomes are most meaningful to you in a future treatment?

Question Title

* 2. Short of a complete cure for your FSHD, what would be the most important benefit that a treatment could provide?

Thank you for taking the time to respond to our survey!
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