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This survey is to be answered by or about a single individual who has been diagnosed or told they have FSH muscular dystrophy. (A parent, guardian, or caregiver can respond on behalf of an affected individual. Please answer the questions as if you are the patient.) Your responses are confidential. Responses are tied to a specific IP address. If you have other family members who also have FSHD, please feel free to forward them the email with the link to this survey.

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* 1. What outcomes (changes and improvements to your quality of life) are most meaningful to you in a future treatment?

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* 2. Short of a complete cure for your FSHD, what would be the most important medical or health benefit that a treatment could provide?

Thank you for taking the time to respond to our survey!
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